March 23, 2025
In support of
The Bachman Family
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The Bachman Family
Thank you so much for all the encouragement and prayers for Landry and the rest of us.
We’ve had a lot of back and forth with her feeding tolerance since we started trying Tuesday. Several times she’s been so uncomfortable that we’ve had to just completely stop, give her a break, and start back up a little behind where we had been. She tolerated the jump to 50% formula from 25%, though, which is encouraging because 50/50 is a concentration she could go home on and I feel comfortable continuing to increase on my own.
We were never able to get IV access but kept her hydrated enough that we didn’t have to start a PICC line either. Had she not tolerated adding formula to her feeds on Thursday, we would have had to start an alternate form of nutrition no later than yesterday so it’s a blessing we didn’t have to navigate that. The lack of IV access and Landry’s veins in general did start the conversation about how many times we do this before discussing a permanent port (or justify it for insurance, more so). I hope we have a ways to go before we talk more seriously about that, but we’ll take it as it comes.
The virus is running its course as they slowly do. Her cough is awful but her lungs are still clear. We are trying to help break up the chest congestion with saline nebulizer treatments in addition to the vest and cough assist machines that we do at home. We’ve also been doing deep suctioning (it’s as unpleasant as it sounds) to help her get out what she can’t on her own. She does surprisingly well with it but I know it’s uncomfortable.
The problem with being rhino/enterovirus positive is that it’s two different viruses that are genetically identical so there’s no way of knowing for sure which one she has. Enterovirus enters through and affects more the GI tract and rhinovirus enters through the nose and causes more respiratory symptoms. Of course, it’s not common for one or the other to cause both sets of symptoms, but it is possible… and here we are. I sometimes joke that having a child as rare as Landry restores the hope that, truly, anything is possible. 😂
Walking the halls of a children’s hospital is a stark reminder of what a privilege it is to be able to stay here and be Landry’s voice, but the hardest part of that will forever be having another child that doesn’t get to be with me while I’m here. I’m thankful for technology and FaceTime, grandparents (and greats too!) and friends all making sure Chandler is well taken care of and happy, and I know she is too.
I got more sleep last night than I have been, which I needed probably more than I even realize. I also had Pete bring my walking pad from home over and that has been such a treat! I’ve learned that sometimes when taking care of yourself seems impossible is exactly when you need to do it the most. Having a routine (I use that term very loosely 😂) and some sense of normalcy helps with that so much.
Overall, we’re all in good spirits and doing fine. The last 24 hours have definitely been encouraging and, if I even dare say it, I think we are seeing the light at the end of the tunnel. Thank you so much for continuing to pray for our family. We are blessed.
Love,
Lindsay
We’ve had a lot of back and forth with her feeding tolerance since we started trying Tuesday. Several times she’s been so uncomfortable that we’ve had to just completely stop, give her a break, and start back up a little behind where we had been. She tolerated the jump to 50% formula from 25%, though, which is encouraging because 50/50 is a concentration she could go home on and I feel comfortable continuing to increase on my own.
We were never able to get IV access but kept her hydrated enough that we didn’t have to start a PICC line either. Had she not tolerated adding formula to her feeds on Thursday, we would have had to start an alternate form of nutrition no later than yesterday so it’s a blessing we didn’t have to navigate that. The lack of IV access and Landry’s veins in general did start the conversation about how many times we do this before discussing a permanent port (or justify it for insurance, more so). I hope we have a ways to go before we talk more seriously about that, but we’ll take it as it comes.
The virus is running its course as they slowly do. Her cough is awful but her lungs are still clear. We are trying to help break up the chest congestion with saline nebulizer treatments in addition to the vest and cough assist machines that we do at home. We’ve also been doing deep suctioning (it’s as unpleasant as it sounds) to help her get out what she can’t on her own. She does surprisingly well with it but I know it’s uncomfortable.
The problem with being rhino/enterovirus positive is that it’s two different viruses that are genetically identical so there’s no way of knowing for sure which one she has. Enterovirus enters through and affects more the GI tract and rhinovirus enters through the nose and causes more respiratory symptoms. Of course, it’s not common for one or the other to cause both sets of symptoms, but it is possible… and here we are. I sometimes joke that having a child as rare as Landry restores the hope that, truly, anything is possible. 😂
Walking the halls of a children’s hospital is a stark reminder of what a privilege it is to be able to stay here and be Landry’s voice, but the hardest part of that will forever be having another child that doesn’t get to be with me while I’m here. I’m thankful for technology and FaceTime, grandparents (and greats too!) and friends all making sure Chandler is well taken care of and happy, and I know she is too.
I got more sleep last night than I have been, which I needed probably more than I even realize. I also had Pete bring my walking pad from home over and that has been such a treat! I’ve learned that sometimes when taking care of yourself seems impossible is exactly when you need to do it the most. Having a routine (I use that term very loosely 😂) and some sense of normalcy helps with that so much.
Overall, we’re all in good spirits and doing fine. The last 24 hours have definitely been encouraging and, if I even dare say it, I think we are seeing the light at the end of the tunnel. Thank you so much for continuing to pray for our family. We are blessed.
Love,
Lindsay
Lindsay Bachman
9 months ago
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Rita Mikel
Bethany Mikulis
LCC Office