It’s been awhile since I’ve shared an update. Things have been a lot of staying busy with a mix of good news and waiting news.  Which pretty much sums up life post–bone marrow transplant.

🩸 Labs looked great today. No transfusions or additional support needed, always a win! Her other markers are holding steady and showing what her team expects at this stage. Her doctor has been pleased with her labs and how she presents overall. Teddie is playful and happy. She is still very much her active self and for that we are thankful. 

 

 We’re still waiting on this week’s chimerism results which should be back Thursday. This is the test that tells us how her donor cells are doing and how they are populating in her body. Obviously the goal is to have 100% donor cells. The lymphoid cells have been moving up and down for weeks. Her disease was in her lymphoid cells previously which makes this something we want to get an handle on. We want 0% of Teddie’s old b-cells hanging around. We’re praying for an increase in her donor cells on Thursday. We know this process takes time, but an upward trend would be a huge encouragement. 

 We found out her donor is sick, so his DLI collection (extra donor cells to help increase her numbers) has been pushed back. This may or may not affect Teddie’s DLI timeline, since she won’t be off immunosuppressants until later this month. Still, it’s hard not to feel the weight of even a possible delay. 

 

💛 Today’s biggest relief came in the form of calm. Teddie was given a small dose of Ativan before her appointment and was able to relax in a way we haven’t seen in weeks. Port access went better, and she ate more than she has in days. She’s told us she’s nervous to eat — we think it’s tied to a fear of throwing up — but today she ate all day and had no issues. As hard as it is to add another medication, this was an answered prayer and a much-needed break for her little heart and body. 

Last week was a very emotional week for us all. It is hard to see how difficult port accesses have become. One bad experience inpatient really left an impact on our girl. We’re hoping to get back to a more manageable place so we can try some calming strategies. 

We’re still taking everything day by day, praying for the right timing and trusting her team to guide each step wisely. 

🙏 Please pray with us for: 

• Improvement in her donor chimerism 

• Smoother port access and reduced anxiety 

• Her donor’s full recovery 

• No significant delays in the DLI 

• Strength and healing for her whole body 

 

We’re also thinking of our brave transplant buddies Jayce and Royaltee — praying for their healing and strength, too. This journey is lighter when shared.  

We keep coming back to this verse as we navigate so many unknowns. “At the right time, I, the Lord, will make it happen.” 

We’ve done everything we can to follow the treatment plan, manage symptoms, and stay on top of each decision. But some things like chimerism, delays in the DLI, and how Teddie responds emotionally  are simply out of our hands. 

 

This verse reminds me that healing and progress aren’t on our timeline, they’re on God’s. And that’s hard. But it’s also where faith begins to matter most. 

We’re trying to lean into trust instead of control, to believe that even the delays and detours are being used for her good. We remind ourselves: the same God who gave us this fiery, strong girl is the same God holding every cell in her body in His hands. 

 

So we keep showing up. We keep advocating. We keep praying. And we keep choosing to believe that at the right time, He will make it happen, even if we don’t understand the timing yet. 

Thank you all for being here with us. For my non-Facebookers, we appreciate you checking Teddie’s support page. I plan to update more. Thank you all for praying for our girl.