Inpatient Again
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Standing in Faith for Eva
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Standing in Faith for Eva
After a truly amazing weekend relaxing and spending time with our dad's Eva came home and complained of pressure in her face. It began to swell and we tried her medications, a steam/vapor shower, and then sent her to bed. Overnight she was whimpering a little in pain, but was up bright and early Monday morning to go shopping and finish up her 4H modeling selections. While we were in town, I snapped a picture of her face and sent it to the team. Dr. Thompson messaged me around 11:30 and asked that I take her to Children's Mercy ER because he wanted a CT of her face and possibly to admit her. Thus started, one of the worst nights of our journey.
At the ER, we were told that Eva needed to be accessed before she could have her CT scan or any medications. She was also told that until the doctor released her she couldn't eat. We had checked in and were in a room by 4:10. Eva is historically EXTREMELY EASY to access, but last night they struggled. The nurse tried to access her, then tried to "wiggle" the needle into place, then tried to "force" fluid into the port to make it get blood return. None of these things worked, so he removed the needle and decided to try again. This time he did not get the needle into the right location, "wiggled" and "forced" until she was in tears because it was hurting all up into her armpit. Keep in mind, the purpose of the port is to be a central line and once accessed, should be pretty painless. The nurse removed the second needle and called in the nurse in the ED department with Oncology (4 Henson) floor experience to try to access her. The second nurse did his best, but by that time, the port was swollen and oozing bloody saline from not being accessed correctly and trying to push fluids. This nurse tried to use a longer needle and accessed Eva a third time and then tried to "wiggle" and "power flush" resulting in blood going everywhere and flowing so heavily that he couldn't get it to stop bleeding with a pressure bandage, so he removed the needle and let her rest. Finally, at a little before 10:00 PM, the Vascular Access Team came in to try to access her for the final time. By this time her chest was extremely sore and bruised and was still seeping bloody saline. She saw those women walk in and had her first ever panic attack. She was sweating all over, couldn't breathe, and screaming for her daddy. William was home with James, so I did my best and cried along with her as those women finally accessed her port and got her calmed down enough to put her into a CT scan. By this time, we were notified that her platelets were 17 and she would be admitted for platelets and some antibiotics. We made it to the room around 11:30, ordered some "dinner" and tried to get some rest.
This morning at 6:30 AM the construction crew above her room started knocking down a wall and using a jackhammer, or at least that is what it sounded like to us, so we got up, got dressed and waited for the teams to round.
The end result... No one knows.... the Oncology team, headed by her oncologist today said that she has stumped them, the ENT team says that her face on the inside looks better than it ever has, and the Opthamology team says that everything is as it was when they saw her inpatient three weeks ago. Infectious disease says that they are concerned that she has another infection, but cannot tell at this time where it is or how to treat it... their best guess after speaking with ENT is that there is soft tissue infection around the tumor location... but they don't really know. She might have a UTI, she might not. She might.... In the end, no one is really sure. The only thing that we are sure of is that she EXTREMELY over being admitted every three weeks for random infections and never getting any answers.
Eva tried to beg Will to come up to KC last night, but he couldn't and she made him promise to come up this morning. He made it up to the hospital around 10:30 and I had already promised to be home in time to get James to the dentist by 3:00 in Baxter. Although it seems weird, Eva clings to me at home and the second we get to Kansas City, she wants her dad and her dad only. She says that I worry to much and she has to worry about me getting sick, so she needs him to be there because he is more fun. Either way, it is hard. I understand her frustration and pray daily that she continues to have the fire to fight. She was able to get three JellyCats out of me from the gift shop and Cheesecake Factory for Dinner from her daddy. Our fervent prayer is that she get some good rest and that the teams can finally decide what is causing her to be admitted every three weeks and put a stop to it. She did make Dr. Thompson promise her that she can model on Saturday, so we will see how that goes! Keep praying and thank you so much for all of your thoughts, prayers, and support through this journey. Fighting cancer round two is SO MUCH HARDER than the first time! I hope to have more and better updates soon.
Her biggest upset right now, if you were to call and ask, is that she wishes she could take Oliver her dog to the hospital with her. He is not a "trained therapy dog" so he is unable to go up with her. If you know of anyone willing to help train Oliver and get him to where he needs to be, please send me their information.
If you would like to send Eva a card for Free, you can go to Children's Mercy online and write her one. She is in room 1 on 4 Henson.
#evastrong
#healeva
#fightlikeachristian
At the ER, we were told that Eva needed to be accessed before she could have her CT scan or any medications. She was also told that until the doctor released her she couldn't eat. We had checked in and were in a room by 4:10. Eva is historically EXTREMELY EASY to access, but last night they struggled. The nurse tried to access her, then tried to "wiggle" the needle into place, then tried to "force" fluid into the port to make it get blood return. None of these things worked, so he removed the needle and decided to try again. This time he did not get the needle into the right location, "wiggled" and "forced" until she was in tears because it was hurting all up into her armpit. Keep in mind, the purpose of the port is to be a central line and once accessed, should be pretty painless. The nurse removed the second needle and called in the nurse in the ED department with Oncology (4 Henson) floor experience to try to access her. The second nurse did his best, but by that time, the port was swollen and oozing bloody saline from not being accessed correctly and trying to push fluids. This nurse tried to use a longer needle and accessed Eva a third time and then tried to "wiggle" and "power flush" resulting in blood going everywhere and flowing so heavily that he couldn't get it to stop bleeding with a pressure bandage, so he removed the needle and let her rest. Finally, at a little before 10:00 PM, the Vascular Access Team came in to try to access her for the final time. By this time her chest was extremely sore and bruised and was still seeping bloody saline. She saw those women walk in and had her first ever panic attack. She was sweating all over, couldn't breathe, and screaming for her daddy. William was home with James, so I did my best and cried along with her as those women finally accessed her port and got her calmed down enough to put her into a CT scan. By this time, we were notified that her platelets were 17 and she would be admitted for platelets and some antibiotics. We made it to the room around 11:30, ordered some "dinner" and tried to get some rest.
This morning at 6:30 AM the construction crew above her room started knocking down a wall and using a jackhammer, or at least that is what it sounded like to us, so we got up, got dressed and waited for the teams to round.
The end result... No one knows.... the Oncology team, headed by her oncologist today said that she has stumped them, the ENT team says that her face on the inside looks better than it ever has, and the Opthamology team says that everything is as it was when they saw her inpatient three weeks ago. Infectious disease says that they are concerned that she has another infection, but cannot tell at this time where it is or how to treat it... their best guess after speaking with ENT is that there is soft tissue infection around the tumor location... but they don't really know. She might have a UTI, she might not. She might.... In the end, no one is really sure. The only thing that we are sure of is that she EXTREMELY over being admitted every three weeks for random infections and never getting any answers.
Eva tried to beg Will to come up to KC last night, but he couldn't and she made him promise to come up this morning. He made it up to the hospital around 10:30 and I had already promised to be home in time to get James to the dentist by 3:00 in Baxter. Although it seems weird, Eva clings to me at home and the second we get to Kansas City, she wants her dad and her dad only. She says that I worry to much and she has to worry about me getting sick, so she needs him to be there because he is more fun. Either way, it is hard. I understand her frustration and pray daily that she continues to have the fire to fight. She was able to get three JellyCats out of me from the gift shop and Cheesecake Factory for Dinner from her daddy. Our fervent prayer is that she get some good rest and that the teams can finally decide what is causing her to be admitted every three weeks and put a stop to it. She did make Dr. Thompson promise her that she can model on Saturday, so we will see how that goes! Keep praying and thank you so much for all of your thoughts, prayers, and support through this journey. Fighting cancer round two is SO MUCH HARDER than the first time! I hope to have more and better updates soon.
Her biggest upset right now, if you were to call and ask, is that she wishes she could take Oliver her dog to the hospital with her. He is not a "trained therapy dog" so he is unable to go up with her. If you know of anyone willing to help train Oliver and get him to where he needs to be, please send me their information.
If you would like to send Eva a card for Free, you can go to Children's Mercy online and write her one. She is in room 1 on 4 Henson.
#evastrong
#healeva
#fightlikeachristian
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