Support Registry Update

Induction ends

In support of
Rowan
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Today was a big step and a scary test. We tested a month ago and again today his bone marrow. From my understanding the bone marrow test that happened first confirmed the worst news I've ever gotten in my life and hopefully the news we get back from the bone marrow test that happened today is good news that the chemo worked and we are on a track of better health ahead. 

The thing with leukemia I guess is it takes some time someone the other day said 3 years .. before they consider not seeing any bad cells as remission... But technically the hope is that he is in remission now!!! And we are just making sure that shit doesn't come back. 

It's been really hard seeing him suffer during this month with chemo, pokes, taking so many different meds for pain and to prevent things and steroids ....  We stopped the steroids last night. They said the first month is the hardest with how long the steroids are. (So far I have nothing to compare it to but it has been difficult) The hunger!!!! The wild hunger that comes from these steroids and the chubby cheeks and a little bit more of a belly than before.... Late night munchies I let him eat whatever he wanted. I'm grateful he is eating because before this he had kinda lost his appetite. They warned me he would get angry but he never did .... Just uncomfortable and very hungry and maybe less patient than before... But I'm looking forward to having my sweet giggles to back. 

I want to just warn anyone reading this... Sorry... I know I'm not the best at writing and probably have run on sentences and lots of errors.... But right now I don't care. I don't have much time but wanna share with who cares to know. I'm sorry iv never been good at this kinda thing but I'm trying cuz I think it's important to remember and I'm hoping some day I'll look back and be like wow that was a bad dream and I'm glad we got through that .... God willing we will! He is the strongest, sweetest, bravest little man and I'm so proud of him for doing all he can and leaning on me when he needs support.


I love you all. Thanks for the prayers and good vibes. Makes me cry happy tears knowing people are rooting for him more than I could truly express. 

I'll let you guys know when we find out what's ahead... Kinda in the dark again. Sucks not knowing.



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Comments

Kim Cox

Continued prayer sweetheart
  • 21 days ago

Marie Sayre

Beautiful just like you and from the heart. Ro is a lucky lil guy to have you on his side. You’re his rock and he got a gem!!! I’m continuing to pray for a healthy happy Ro! We love you so much. Keep it up lil warrior!
  • 21 days ago

Brandon S

Love you guys. Glad he didn’t get angry. He’s a nice guy
  • 21 days ago

Loriharding3

Praying for good news from this testing. It's been so hard on Rowan, but I think more so on you as you try to balance it all. we are here for you sweet mama! Hang in there. love you.
  • 21 days ago

Stephanie Coddington

I’m so happy to hear that chemo is working, and oh boy , the roid rage. It’s real. 😄 sawyer was on them multiple times for bad asthma. He once laid in the grass whit it was pouring down rain and wouldn’t get up, he was like 3. He also tried to “run down the street” and so hungry he was eating a plain heal of bread lol.
I don’t like them though either, so I get it. I hope he is back to himself in no time! Thinking of you and the family , thank you for keeping us posted .
  • 21 days ago

Bjjbutterfly

I love you all so very much and I pray for your journey every time I think of you (which is often). Keep leaning into Jesus. He already knows and He has all the answers. 💝
  • 20 days ago

Kathy Moller

Thanks for sharing this… we will
Co timid to think positively for you ALL!!
  • 20 days ago

emilee jensen

I pray you get good news from this test. You are an incredible and strong mama and your babies are testament to that. Keeping you and your family and Rowan in my prayers. Thinking of you, there will be good moments amidst the bad just breathe through the not so good ones and you and your sweet boy will get through!
  • 20 days ago

Evenhus Donna

Praying 🙏 for all of you beautiful lady. God has it ❤️
  • 18 days ago