Support Registry Update

We’ve hit our first $1000!

Noel photo
In support of
Noel
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We feel truly blessed to have so much support. As some of you know, I continue to work as well as care for all of Noel’s medical and physical needs. I am so dedicated to giving him the best chance at life and fundraising allows me to not only provide but also focus on his care. Noel is officially down to only one anti convulsant and is doing great we are hoping to wean him off the last one this upcoming summer. The progress now that he has come off of topiramate is becoming more and more visible. He is more awake, more vocal, he is chewing better (less choking and vomiting), he is more determined to move his body to get something he wants which are all super promising and he is actually retaining these abilities whereas in the past he hasn’t. We are continuing to fundraise in other ways some of you may have seen I am selling Easter baskets this season, if you don’t follow us on Instagram or TikTok you can see more daily updates there: @EpilepsyMomDiaries. Thank you so much from the bottom of my heart. My son will know as he grows how much love has been poured into him. 💜

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