Support Registry Update

Mylah was Life Flighted

In support of
Mylah
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Good morning,
Mylah was life flighted last night due to having a focal seizure. Another new type of seizure that had presented itself and that she had a hard time pulling out of. After he oxygen started to desaturate we had the option to take her to a local hospital (who doesn’t have the supplies if she were to need intubation) or life flight her to get her directly to Rainbow Babies. So again, we are admitted with another EEG, her medication was increased again. I am writing this with an incredibly heavy heart. Please pray for my family, my kids and especially my little girl who can’t seem to catch a break. 

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