Support Registry Update

Good News!!

In support of
Mylah
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Good news!! After a couple weeks of countless calls, telehealth appointments, multiple neurologists and epileptologists. We were able to get a new rescuer medication for Mylah in case of another emergency. This is an intranasal medication that will have to be given to her through her nose, with hope it’ll cross her blood brain barrier faster and stop the seizure before it increases in length! PRAY this is our rescue med for our sweet girl!! 🙏

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Comments

Abby Zachritz

Praying for your sweet girl
  • 3 months ago

Brianzumack

Love you both. Hopefully this is a step forward
  • 3 months ago