^{Support Registry Update}

Not what we wanted to hear

In support of
Lincoln Hocevar

Today has not been the best day. Let's start with the good news. Lincoln was supposed to start the fifth chemo cycle today, but we were able to push it back to next week. We are planning to go see some friends and the doctor wanted us to be able to enjoy our time and for Lincoln to feel good during. So, we are happy about that.

Now the bad news. Yesterday Lincoln had an MRI and today he had a lumbar puncture. Both are routine before starting the next cycle of chemo. The oncologist came and spoke with us today about the results of the MRI. The quick version is that there is a small mass in the same area as his brain tumor was. It is unclear as to what the mass is, but the doctor believes it is something that will need to be surgically removed. We were told by the neurosurgeon after his operation in December that he was able to remove everything that shouldn’t be there, but follow-up imaging showed that there was something that remained and the plan has been to keep a close eye on it. It does not seem to be growing very quickly, so the surgery (if necessary) would fall after the completion of chemo and before radiation. The doctor is going to meet with our team, the radiologist, neurosurgeon, and tumor board to discuss this further and develop a plan moving forward.

As of right now, Dave and I have more questions than we have answers. We are very frustrated, sad, and scared. We were feeling so optimistic and like we were on the home stretch and now, not so much. The thought of Lincoln going through another brain surgery is intolerable.

Anyway, we will keep you up to date, hopefully we will have more information next week. Thank you again for all your support.

Larkin Hocevar
10 months ago

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Comments

Christina R

Oh Larkin, I’m so very sorry about this setback. I’m glad your doctors are keeping a close eye on everything and found it, but I can’t imagine inching towards the finish line and then having this wrench thrown in the plan. Sending all of our love your way.

10 months ago

Christa Ralls

Enjoy your weekend
Praying that another surgery will not be needed 🙏

10 months ago

Jeanne Kelly

💔🙏🏻. Sometimes emojis say what we don’t have the words for. One day at a time. Prayers for Lincoln always.

10 months ago

Connie Schaefer

Larkin my heart breaks for you and your precious son. I will continue praying for you and Lincoln. 😘😘😘

10 months ago

Audreyhkilinski

I am so sorry and pray that Lincoln recovers and sending love to you all.

10 months ago

Audreyhkilinski

I am so sorry and pray that Lincoln recovers and sending love to you all.

10 months ago

Linda McKenzie

Expect a miracle… ♥️🙏🏻🙌🏼🕊️
Love to you all..

10 months ago

Martpent

Intolerable. So maybe you can avoid engaging with that thought head on right this minute. While you enjoy your time with friends, ask your questions, get through the next chemo, maybe you address the thought of surgery only when you have to. It's going to work on you on its own, while you move through the shock of it. I mean, it seems like you don't have to rush yourselves to accept it and figure everything out right now. That's pressure you don't need all the time. No way this is a streamlined process. When I read reports of this kind of news, I feel like I can't breathe. I just want to breathe with you, breathing love to you!

10 months ago

Sundezine

Wishing you continued strength and sending all our love. Prayers for Lincoln. ❤️

10 months ago

Esther Sumner

Ahhhh so discouraging!!!! Praying for the mass to disappear. And in the meantime praying peace over you and your family.

10 months ago

Jessp4315

Oh Larkin, I am so sorry. I cannot imagine the stress and frustration you and Dave are feeling. If you can, keep your eyes to the future of complete healing! Sending you so much love and we are praying for Lincoln!

10 months ago

Susan Richardson

Brokenhearted for y'all in hearing this news. I'm continually praying for healing, grace, comfort and peace for Lincoln and your whole family.

10 months ago

Chris Walker

As always our family is thinking of y’all. We’re always available if you need anything

10 months ago

Nancymorgan1966

I'm so sorry for this news. Hugs to all.

10 months ago

Jennifer Burbine

I’m so sorry. Sending good thoughts and prayers to Lincoln and your entire family.

10 months ago

Timberdance

Oh Larkin and Dave! My heart goes out to you and Lincoln. What a hard journey! I and Zoe are with you with love every step of the way! ❤️❤️

10 months ago

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