Support Registry Update

Encouraging Day!

Lincoln Hocevar photo
In support of
Lincoln Hocevar
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Well, it feels like the last update was a long time ago, but I guess it really wasn't.  We are still in the hospital.  Lincoln has been having PT/OT and speech daily, speech is working with Lincoln on his memory, he's had some problems with short term memory since the surgery.  He's also working with psychiatry which seems so be helping his mood.  Still having ups and downs, but definitely understandable.

Today has been one of the best days we have had so far!  Over the weekend they continued to raise his EVD and this morning they clamped it.  So, all day, his brain has been draining the CSF on its own!  We are watching him for any symptoms of increased pressure but so far so good.  Today he walked all the way to the Kids Zone, which is pretty far from our room!  He had the assistance of a walker, but he did a great job!  We've been out of the bed most of the day and spirits have been up!  

Not sure how long they like to leave him clamped before making the decision to take out the EVD, but that is the next step.  It was very encouraging today, talking with PT/OT, they think he will not need to stay on the rehab floor but could go home and do it outpatient!  They were discussing things we will need to go home with, like a wheelchair, walker, and shower chair.  But any discussion about going home is exciting since every other conversation has been "we just have to wait and see."
Hopefully, tomorrow we will have a better idea of when we can bust out of here!  In the meantime, it has been wonderful getting the siblings up to see him and some of his friends.  One of our dear friends even snuck the puppy in to see Lincoln!  He has loved all the letters and art he's gotten.  We are so blessed to have so much love and support surrounding us.  Thank you.

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Comments

Diddy Pentecost over 1 year ago

All of this news is so encouraging! Walking like that. OUT OF BED MOST OF THE DAY. His physical self has been through so much and has been healing but not fast enough for all that other self! Good luck remembering this for tomorrow when the leaps might be more of a few steps. IT'S HAPPENING. It's never an even pace. And thank you for the photos and the open way you write. I appreciate this so much and think of y'all so much. LOVE

Jill Singer over 1 year ago

Aww, this is wonderful!! Love he got to see his siblings and pup! So happy for all of you. Keep up the great work Lincoln. You are really making tremendous progress!

Jenny Dyer over 1 year ago

Amazing news. If he needs a wheelchair we have one he can borrow until February.

Sandrajwatts over 1 year ago

Love the sneaking in of the puppy! I’m so glad everything is progressing nicely! Continued prayers for everything and everyone ❤️

Sundezine over 1 year ago

Aw this is really wonderful news! So nice to hear how he's progressing. Lincoln, you're amazing!

Jessp4315 over 1 year ago

Amazing news! Thank you for sharing the updates. Prayers for continued leaps of strength and healing! Lincoln is an incredible little man!

Carrie.lindemann over 1 year ago

Great news!!

Dexter Culbreath over 1 year ago

This is great to hear! I appreciate the photo as well. All the best…

Jennifer Burbine over 1 year ago

It’s great to hear that Lincoln had a good day. Continued thoughts and prayers to all of you.

Amy.appleman over 1 year ago

This all sounds so hopeful & Lincoln is a strong kid!! I have a good feeling he will be home soon & can start getting back to some normality! So sweet he got to see the pup! 😍 please keep the updates coming & sending prayers & love daily!!

Christa Ralls over 1 year ago

Love hearing y'all had a great day!

Heather Denton over 1 year ago

This is wonderful news. Progress! I am praying every day, and sending love to Lincoln and all of you.

Olivia.matheson over 1 year ago

love sneaking in the puppy. Nothing like a kiss from your sweet pup to get you feeling better

Heatherspeaks2020 over 1 year ago

Such an encouraging update! Sending love and prayers.