Support Registry Update

WEEK 3-CHEMO BREAK

In support of
Jonathan Agin
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 Hi Family and Friends!
As I have reached the halfway point of my first "off" month from chemo, I wanted to give an update on my progress and how I’m adjusting to life as a leukemia survivor. All things considered, I’m doing very well. I resume my daily chemo (Arsenic) regimen on August 25 for my 2nd 4-week round.

While I’ve been “off” chemo, both my body and brain have started firing on more cylinders again. I still have to avoid crowds, watch what I eat and drink, and maintain a restricted diet — but many of my numbers (white blood cells, hematocrit, platelets) are finally registering in the "normal" range often. That’s a pretty big milestone!
 
What have I been up to during my chemo-free month?
  • Attending my tennis team’s playoff match (outdoor events = safer and more fun).
  • Eating out once or twice — yes, we’ve embraced the “Early Bird Special.” Retirement community, here I come. 
  • Enjoying meals at friends’ houses and catching up in person.
  • Visits from friends during the day— I’ve missed this so much. 
  • A weekly walk to catch up with my sister Lori.
  • A day trip to the mountains for a change of scenery
 
Today, my Physical Therapist said it’s time to crank up the workouts. My balance and mobility have improved a ton — I even kicked my walker to the curb a few weeks ago (don’t worry, it didn’t roll away too far). One of my goals is to get back on the tennis courts soon to see what I can handle physically. Every day off treatment, I feel a little stronger, and that’s incredibly encouraging.

The one stubborn issue? My vision. I’m hoping my optometrist visit this week will fix that — ideally with contacts that let me see normal print again. Right now, my phone text is so big it takes me three swipes just to read a single sentence, and my computer’s zoomed in to 150% so I can tell the “O” from the “Q.” Easing back into work is not even an option until I can see properly again. Unfortunately, there's no way of knowing if this change in my near-sightedness is the result of strokes or treatment medicines.

In two weeks, I see a neurologist and will hopefully get clearance to drive again (on a limited basis). My mornings are much better now — I’m waking up and getting going more quickly — but I’m reminding myself to pace things.

At home, Alli and Darrah are doing great as life slowly normalizes. I’m still not driving, so that’s on Alli, but I have been able to help with meals when the meal train isn’t already delivering something delicious. Huge shoutout to all our amazing friends who’ve kept us fed — it makes such a difference.

I’ve also been able to do house chores, take Duke for walks, and keep things in order. Darrah just started 7th grade last week, so we’re officially back in “school mode,” which means mornings are lively (and by lively, I mean slightly chaotic).

That's about all for now! Thanks for continuing to check in and cheer us on!  It would be hard to be positive during this battle without everyone's love and support! 
Jonathan, Alli, Darrah and Duke! 

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Comments

Werth1108

Jonathan-
So good to read about your continued progress! You’re an amazing person who is keeping everyone’s spirits high because of your tenacity and resilience. I guess you get that from playing for all those years of basketball!
  • 4 months ago

Josh.azriel

We are so happy to hear your recovery is coming along well!
  • 4 months ago

Faith Levy

Wonderful news, Jonathan. May your healing journey continue. Thinking of you.
  • 4 months ago

Bryan Kotin

So great to hear!!
  • 4 months ago

Frances Smith

Glad to hear you are making progress. Keep up the adherence to doctors’ advice.
  • 4 months ago

Kevin jones

Hey jhonathan. This is Kevin from work. It's is such enjoyment to hear you doing better. We miss you. Love you. Keep fighting. We will see you soon Buddy.
  • 4 months ago

Lori Agin

Go Jon go! Your progress is such a bright lighting my days!!! Xo Loti
  • 4 months ago

Nicole Willis

Happy to hear the good news and progress. Keep it up.
  • 4 months ago

Evelynsw1

So happy to hear you are doing so well.
We wish you continued progress in your journey to a complete recovery.
  • 4 months ago

Michelle Alperin

Thank you for this update! Your positivity and sense of humor are wonderful and you continue to be a rock star! Hugs to all 3 of you!
  • 4 months ago

Joan Levine

Great to read that you are doing better! Much love from Oregon! Aunt Joanie
  • 4 months ago

Adina Sharfstein

Jonathan; It is wonderful to hear how well you’re doing! You’ve shown tremendous progress; your determination and great attitude will serve you well! Stay strong and keep fighting! Sending love and healing prayers🙏🏻🎶🦋💛
  • 4 months ago

Andi Lay

I am so happy you are doing so well! Not that I ever had a doubt!❤️❤️
  • 4 months ago