Admission Day 72.
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Hope for Colby
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Hope for Colby
Every time I try to write an update now, I feel lost. Never quite sure where to begin, or where I last left off. Time is a revolving door, days and nights a bit confusing. ICU care is exactly that, intensive. The plan can change on a dime, which to be honest, is needed most days.
I literally don’t know where I left off last, but the Peritoneal drain is still in place, and still draining in between clamping. Colby now has a fungal infection… in his bloodstream. I’ve been reminded by many how serious this is. Not that I need the reminder of the severity of anything Colby is going through. He has a double lumen Broviac and a single lumen PICC line, which we use constantly. These are made of plastic, and guess what yeast loves to cling to? Praying we don’t have to remove these.
We started anti-fungal medication yesterday, are still on strong antibiotics for peritonitis and are still working hard to manage pain and overall irritability. Colby sleeps between “episodes” now. His sedation is lowered significantly, which is great, but he feels everything still. IV Tylenol helps a little but Tylenol, as you may know, is hard on the liver. Womp womp. His kidneys have still taken a hit (most medications either hit the liver or the kidneys hard). We are trying a pause on diuretics to rest his kidneys. We are constantly trying to balance fluid overload, and intravascular depletion.
We think the pancreatitis may be improving as lipase levels have gone down. Further imaging would still be so helpful but we can’t just yet risk the further injury to his kidneys with contrast. Waiting for the right time to maximize the benefit vs. risk weight.
I’m sure I’m missing stuff, but that’s what I’ve got now. His energy is minimal and so is mine, let’s call it empathetic pain and fatigue.
There’s only so much one can take. I’ve watched this boy take too many hits in the ring of life. We’re ready to fight back, just gotta get up first. Praying we “get up” soon.
Steph Crofts
6 months ago
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