Support Registry Update

February 2026 Intensive Recap

In support of
Believing in Harvie
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Whew! What a wild, beautiful, stretching three weeks we just lived through.

I’ve been reflecting today, and the one word that keeps rising to the surface is thankful. So many blessings have unfolded in such a short amount of time.

First, we finally worked up the courage to create a support page for our daughter. That was not an easy decision. It opened our lives and Harvie’s in a very vulnerable, bird’s-eye-view way. We are endlessly proud of our girl. For all that she is and will accomplish, but we are also deeply protective of what we share. Choosing to invite others in requires a lot of faith and vulnerability. It doesn’t feel that I am in as much control of how I am protecting my daughter. 

But in doing so, we unlocked something incredible— support and community. Because of your donations, shares, follows, and prayers, we are one step closer to therapies that would otherwise be out of reach. We have felt so covered, so encouraged, and so supported as Harvie continues to progress. That kind of love is not something we take lightly. I am overwhelmingly grateful.

Secondly, I truly believe we’ve found a new DMI home. As many of you know, we flew across the country for Harvie’s first DMI intensive. The facility was amazing, and the gains were undeniable. Which naturally set our expectations very high. To find a new facility that is closer to home, more affordable, and just as incredible feels like such a gift. Having an amazing team nearby to walk alongside Harvie in this journey is something I don’t take for granted.

And as if that wasn’t enough, we were also able to get Harvie established with a new neurologist after hers moved to North Carolina. We absolutely loved him and plan to keep him on her team, but our new neurologist specializes in pediatric movement patterns which feels so aligned with where Harvie is headed. Our new neurologist is currently booked out until March 2027 and somehow, because of our new therapist and DMI home, Harvie was able to get in. We’ll be traveling to her clinic every three months. Another moment where all I can say is: thank you, God.

Now for the question everyone keeps asking — how is Harvie doing?

There isn’t a simple answer because DMI intensive therapy is no small thing. It is challenging. It is exhausting. It is deeply intentional work. DMI helps the brain understand the body more efficiently, encourages faster motor mapping, and floods the brain with purposeful sensory input through movement. It builds the connections most of us take for granted every single day.

To simply put it: She showed up, pushed through, put in the work, and is already stronger. She completed 28 therapy sessions in 12 days. And the gains are already undeniable once again. 

One major focus was posture. Previously, Harvie would round her back while sitting and often had a curve when being held. Now, her back is beautifully straight, and her trunk consistently finds midline. When you hold her, you can feel her muscles engaging. It’s the strongest she has ever felt and it’s incredible.

Mobility was another big goal. At the start of these three weeks, Harvie needed arm immobilizers, a TENS unit, hip huggers, a six-inch table tilt (for gravity assistance), plus constant cues and support just to crawl across the table. By week three? No TENS. No hip huggers. Zero table tilt — meaning no gravity help. Minimal support from me. No cues from her therapist. Once we positioned her, she crawled across the table with little support 🙌🏼

Harvie is also working so hard toward independent sitting. Sitting requires strong arm support, which hasn’t always been her favorite thing to use. But her arm strength has improved significantly. She briefly sat on her own and even caught herself with her arms when she started to tilt. Sitting is a huge part of our home program, and I truly believe we’re just getting started there.

And then… walking!

We never intended to work on walking during this intensive. Our primarily goal was to begin building strength and weight-bearing through her legs. But during week two, Harvie decided otherwise. She took off walking! Her will, her determination, and took 22 steps in her longest stretch!🎉

She is showing us what she wants and we will always meet her there. We will never limit her. We will continue adapting, learning, and supporting whatever goals she decides to chase.

There are countless moments I could share, moments that felt monumental, holy, and hard-earned, but I’d have to write a short book to capture them all.

What I do know is this: Our investment into DMI is making a profound difference. It is accelerating her gains and tapping into neuroplasticity during these critical early years. If you’re a medical mama, you know how important these first five years are. We feel the weight of that, but we also feel the hope in it.

So as we close out these three weeks, we move forward tired but incredibly expectant. Thankful for community. Thankful for the right people in the right places. Thankful for a little girl who refuses to quit.

This journey isn’t easy, but it is beautiful. And we are just getting started. 💜

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Comments

Sammi Jones

Yay for all of the gains!! We are so proud of you Harvie!! Also proud of you Zach & Paige for being the loving supporters you are to her!! Continued prayers for Harvie’s strength and determination moving forward!! We love you guys!
  • 15 days ago

Judie Fiedler

Thank you so much for sharing your journey…when I read, My mind pictures Jesus standing along side you and Harvie. I can see Him swatting before Harvie, arms out stretched..:encouraging and cheering her on…what a beautiful life story lies ahead!!! Blessings to all! Judie
  • 15 days ago