Support Registry Update

One week without our girl

Harper's Recovery photo
In support of
Harper's Recovery
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It’s been one week since we lost our sweet Harper. It doesn’t seem possible. It takes my breath away thinking of the minutes, days, weeks, months, and years ahead without her. She truly was the best thing I have ever done.

I want to share some sweet words my husband Ryan wrote… 

“On paper Harper had a hard life with her nicu stay , hip surgery, and an exhausting battle with cancer.  While it was hard it doesn’t mean it was a sad life. Those that knew her most knew her resilience. She was the happiest little girls you could imagine. She didn’t know fear or sadness. So please, do not remember Harper’s story as a tragedy. Remember her for how she lived not what her medical record said.  In 15-20 years from now don’t remember me and Lauren and how sad it must have been for them. Remember  the most beautiful, loving girl to ever live that left us to soon. While this moment in time is sad, her story is not. She deserves a happy story like a caterpillar turning into a butterfly. 

We are forever grateful to have had Harper with us in this life. While she gave me and Lauren meaning and purpose when she came into our world it doesn’t mean that same meaning and purpose has left this world with her because Harper will always be with us and we will continue to be her parents forever and always. I will always feel her presence and know she’s looking after us.”

The last few weeks Harper wanted to listen to “Caterpillar Butterfly Thing” - Jules on repeat.

We felt like she knew and took comfort in the words…

“Safe in my cocoon
Ooo
I might be ready soon
Ooo
Once I grow my wings I’m free
Metamorphosis
Transform joy to bliss
Now I have my wings
I’m ready to leave, leave

Flying way up high
Flying to the sky
Take a flower nap
Drink some dew and have a snack
Say hello to all my friends waiting on wings
It’s a caterpillar butterfly thing”

Please know how much our family appreciates the prayers, support and kind words sent our way throughout Harper’s life. She was so special and whenever you see a butterfly please think of Harper.

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Comments

Gabpollock

Beautifully said. She was pure joy and light and we will think of her and celebrate her often. 🦋
  • about 2 hours ago

Susan Croyle

Such a beautiful tribute to Harper. I never met her, but she sounds like a wonderful, resilient little girl who left this world way too soon. Lauren, you and Ryan have been through so much and are stronger for that. I keep you both in my prayers. As a grandparent, I realize how difficult this was for Harper’s grandparents. I’m sure the memories will stay forever.❤️
  • 29 minutes ago