We have thankfully been home since Thursday evening. On her first night back, Harper hugged her pillow and smiled the moment we tucked her into her own bed.

She has been able to tolerate small amounts of food, though the TPN is likely suppressing her appetite. Still, we are grateful to know it’s meeting all of her nutritional needs. Managing the TPN is quite a process, but I’m becoming quicker and more comfortable with the routine every day.

The child life specialist from hospice paid her a visit yesterday and helped us make some fun art work. Harper picked her favorite colors pink and purple!

Today Harper went to the clinic for a count check and to discuss next steps. Harper got to rock her “Super Harper” outfit one of my sweet childhood friend has specially made for her. 

She is clearly retaining fluid in her abdomen again, but her oncologist wants to avoid another paracentesis; instead, he is increasing her Lasix since her electrolytes are stable. She ended up needing both blood and platelets, which made for a long day, but it should keep her in a good spot for the rest of the week.

If she is able to tolerate it, Harper will start a full week of outpatient chemo next Monday. Our main goal is to keep her home as much as possible, as she is clearly so much more comfortable there.
Thank you for your continued prayers and well wishes.