Support Registry Update

The Good, The Bad, and The Ugly

In support of
Ginny Girmscheid
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The Good

Today's immunotherapy went well overall. I tolerated the premeds they gave me to avoid another allergic reaction to the Rituximab better than usual. My platelets are very low, and since my oncologist is away on a family emergency, it took a while for someone to eventually give the green light for treatment today. I may need a platelet transfusion to continue next steps.

It also took a while to find someone to fill in for my oncologist and comment on my CT scan from yesterday.

When I was first diagnosed with Mantle Cell Lymphoma in July, this was the most relevant finding of my CT scan of the chest/abdomen/pelvis:

Numerous prominent and enlarged lymph nodes in the pelvis, abdominal cavity, neck, and armpits as well as an enlarged spleen that was vulnerable to rupture. While not part of the scan, my legs were filled with visible and rapidly growing tumors that led to extreme swelling and made it difficult to walk.

Yesterday's scan revealed:

The spleen is of normal size and all swollen lymph nodes (lymphadenopathy) that were noted in the previous scan have returned to their normal size or disappeared completely. While not part of the scan, the tumors in my legs have also resolved. My legs have returned to their normal size and walking is no longer a challenge.
 
In the words of the Nurse Practitioner we saw today, this is phenomenal! We are so grateful for this wonderful and encouraging news! The Nurse Practitioner reminded us of the severity of my diagnosis and we recalled the words of my oncologist upon diagnosis that I would be dead within a year without treatment. When I ended up in the ER for a blood transfusion shortly thereafter, I had no doubt she was right.

While they will not repeat a bone marrow biopsy at this time, they said it can be inferred from the favorable CT scan results that the presence of cancer in my bone marrow has likely been reduced as well.

The Bad

Despite the dramatic improvement, I need to complete the original course of treatment. Tomorrow I report to Evanston Hospital for two nights as planned for chemotherapy administered in an inpatient setting.

The Ugly
 
The chemotherapy drug I start tomorrow, high-dose Cytarabine, is a strong chemotherapy drug that comes with many potential side effects. This is the part where I am expected to lose my hair. While many of my friends rock a bald head, I do not think mine will be especially attractive. 

Thank you again for all the love, prayers, and support! We could not endure without you. While today was a mix of highs and lows, we will continue to stay the course and do whatever possible to put this cancer into complete remission.

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Comments

Jen Locklear

Love those scan results!!! Will pray for the inpatient chemo ❤️
  • 4 months ago

Kate Woods

Rejoicing over the good! Praying over the bad and the ugly!

Thank you, LORD, for phenomenal answers to prayer that Ginny's body has returned in many ways back to more normalcy. And thank you that a doctor was found who could green light next steps. We are continuing to ask you, LORD, for complete remission!

Thanks for the update, Ginny. Hugs to all of you there from Tennessee!
  • 4 months ago

Kelley Dickson

Thanks for the update, Ginny. We thank God for specific answers to prayer- you didn’t react to the CT contrast, a hematologist was found to guide decisions and give wisdom about proceeding with treatment today, you handled the rituximab better, AND we thank God that your scan shows the lymph nodes are back to normal.
Praising God for these good things.

And now as you head into a stronger chemo regimen at Evanston Hospital, we pray you will tolerate this chemo with minimal side effects. We ask Jehovah Rapha - the Lord who heals to bring complete healing to your body and put this lymphoma into remission.

We pray that God will sustain you and be your Hemper and shield you from any negative side effects. We pray you will experience the nearness of Immanuel- God WITH you.

“Fear not, for I am WITH you. Do not be dismayed for I am your God. I will help you, strengthen you and uphold you with my righteous right hand.”
Isaiah 41:13

Much love to you, dear Ginny!
Will be praying for you this week!

Kelley 🙏🏻✝️❤️
  • 4 months ago

Brad Neuman

Wonderful news. Grateful for you, Lord and doctors.

Will continue praying for you and your family.
  • 4 months ago

Gerlinde O'Halloran

Thank you for this update, Ginny. Praising God for the good news and asking for his sustaining grace in what is ahead of you. Joining with Kelley in specific prayer.
  • 4 months ago

Margie Palmer

Praising God for these results! I will keep praying for you as you go through this difficult phase of treatment!
  • 4 months ago

Michelle Lentz

Sending hugs Ginny, and praying you know and feel God’s deep, rich, and weighty peace that surpasses our understanding ♥️ And may God hold you, and your entire family, in the palm of His hand.
  • 4 months ago

Danielle Halverson

Ginny-You are beautiful and strong no matter what your head shape is! Ha. God and those who matters see past the outside to your heart and your heart is just lovely! 🙏 Lord Jesus please heal Ginny! Please God come in and restore her white blood cells, take away the tumors, heal her spleen, Restore her body. Thank you, father for giving her a love for you and a clear mind to see the highs and lows through this diagnosis. We love you, Lord and trust you. In Jesus mighty and saving name. Amen.❤️
  • 3 months ago