We wanted to share an update on our sweet Gabriel and some of the challenges our family is facing right now.

As many of you know, Gabriel was born extremely premature and has overcome more obstacles in his young life than most people face in a lifetime. He lives with spastic dystonic quadriplegic cerebral palsy, developmental delays, feeding difficulties, and many other complex medical needs. Despite it all, he continues to smile, work hard in therapy, and show us every day what true strength looks like.

Recently, we received difficult news regarding Gabriel's hips. After imaging and evaluations, we learned that his left hip is significantly displaced (subluxated). While he is not currently in pain, his doctors have explained that he will likely need hip surgery in the future to prevent further complications and preserve his mobility and comfort as he grows. As parents, hearing that your child will need another surgery is heartbreaking, even when you know it's necessary.

In addition to this news, we were devastated to learn that Gabriel's medically necessary feeding chair was denied by our insurance. The chair is not a luxury item—it is a critical piece of equipment that would help him sit safely during feeds, support proper positioning, reduce aspiration risks, and allow him to participate more comfortably in daily activities. We are appealing the decision, but the denial stated it was a "benefit exclusion," meaning the insurance company claims this type of equipment is not covered under the plan.

We are also continuing our ongoing battle to secure Medicaid coverage for Gabriel. Families with medically complex children often find themselves caught in a system that doesn't always recognize the extraordinary needs their children have. Ashley has spent countless hours completing paperwork, making phone calls, gathering medical records, and advocating for the services and support Gabriel desperately needs. Unfortunately, despite his significant disabilities and medical complexity, obtaining Medicaid has been an uphill battle.

On top of his therapies, specialist appointments, G-tube care, equipment needs, and future surgeries, we continue to fight every day to make sure Gabriel has access to the resources that will help him thrive.

We share these updates not for sympathy, but because so many of you have supported, prayed for, encouraged, and loved Gabriel throughout his journey. Your kindness reminds us that we are not fighting these battles alone.

Please continue to keep Gabriel in your thoughts and prayers as we navigate upcoming decisions regarding his hip, continue the appeal for his feeding chair, and work toward obtaining the Medicaid support that could open doors to much-needed services and equipment.

Thank you for being part of Gabriel's village. Every share, prayer, message, and word of encouragement means more than you know.

💙 Gabriel Strong 💙