Support Registry Update

9/5/25 Rehab Doctor Appt.

Elise's Miracle Journey photo
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Elise's Miracle Journey
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Getting Daddy in on a picture too! 🥰

We had a follow-up appointment in Sioux Falls today with her rehab doctor who oversees Elise for her dystonia. 

🙌 🙏 Thanking God for another good appointment today! On this journey we don't always get these but today was good! God is good!

He rates tone from 0-4. "0" is what he described "What you guys and I have." Elise was at a 1. He didn't rate her last appointment to compare in numbers but said, "She is doing great! It's definitely much better than the last time I saw her so keep up what you're doing!" Which we agree, she's come  a long ways on her tone and we are so happy to see these improvements but it's great to hear from the medical professionals too the great changes!

He gave some options to we can do to continue to improve the tone but we are not at the point where we want to do either of those as we feel she is doing well and improving. We will continue as is since he is pleased with how she is progressing and we are hopeful to continue to see more improvements with our current plan of care! 
🩷

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