This update is one I didn’t expect to make. EDITH IS DOING AMAZING! I was told she’s nearing the end of her life several times. Since birth. She’s been regulating her temperature, no neuro storms, no hospitalizations. She’s been just peachy! We do however still have to drive an hour each way to visit with her. This is hard when we have to keep a roof over our head for us and our other daughter who is 7 and in school.
Her home is an hour from us so we travel daily but the expense is getting harder to handle the daily bills and gas. Anything is appreciated and with God anything is possible!
She also got her ABI vest that will help loosen secretion in her lungs. This will help improve Edith’s condition greatly!
Please keep Edith in your prayers as we start looking into stem cell therapy for her. Thank you all for the love and support!