Support Registry Update

Happy Easter

In support of
Deana's Cancer Journey
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I had the MRI of my head. The mass has gone down more it is now 11mm, they are seeing a tiny new spot. The mass in my spine has grown as well as the one in my right lymphnode in the armpit area. Doctors are seeing good things but still growth and they want to stop it head on.

I have to go for a lumbar puncture tomorrow to see if the spinal fluid has any cancer cells. If it does we already have a plan. I will get a port on the top of my head called an ommaya. The neurologist oncologist will be the one to take some spinal fluid out, have it tested each time for cells and then inject herceptin in. It takes about 10 minutes. I will go weekly at first, I forgot how often after that.

I will also be on 2 chemo pills. Dr. Anderson and I had a video appointment on Tuesday and we problem solved, she emailed colleagues on the tumor board, wants me to still see my NP for integrative things. My liver enzymes are still up, she asked me if I am taking ivermectin I laughed and told her no but I know many people that do.  She is going out of the country and wanted to make sure we had a plan before she left. I love that!

We talked about high quality protein, anti inflammatory diet, low impact exercise, resistance training, supplements she wants me on. Those are CoQ10, ALA, L-Carnitine, Omega 3s, Vit D.  She was careful to talk about the things I do with the NP. She knows when I can afford to stay doing those therapies I have a lot more healing and stability. This is so frustrating because I could be doing better!!  Isn't it sad that the government can reprimand her for that?

I see a lot of positive things going on. I am able to listen to my body so much better. I know my limits, I know what foods make me feel icky, I know what things stress me out. I also realize how much I want to live so I can really LIVE life to the fullest.  The crazy part, is I felt better in my 40s than I did in my 20s and 30s. I had a lot of adrenal and thyroid fatigue. I know so much more about food, stress, and our environment.

If I do need to get the ommaya put in my head I have an issue.....Freddie. She is a mama's girl that loves to lay around my head. Dr already told me to wear a hair bonnet. Freddie can't be locked out of my room because that is where she mostly stays. She comes in the living room but not for long. She doesn't like my nephews dog.

Speaking of Freddie. I love me some Freddie Mercury! Queen's song "These Are the Days of Our Lives" has been stuck in my head. My mom and I used to clean and dance around to Queen, even in the car (dance).  Can you tell who my Freddie girl is named after?  If you watch the video you will see Freddie has a vest on with cats, he loved them :)

https://youtu.be/oB4K0scMysc?si=-ev16Qkun2PnFDTy


Hope you are all having a great day. Love to all!



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