I had the spinal tap or lumbar puncture which ever you want to call it on the 6th.  This time it was SO much easier. I went to radiology for them to do it. I laid on my stomach and I was able to watch them put the needle in. Getting the numbing shot wasn't even as bad.  I had to lay flat on my back after they were done. When I sat up I had a bit of a headache so the nurse asked me to lay back down and got me 1,000 mg of tylenol. I wasn't sore in the area like I was last time, I only got a slight headache.

I went to see Lori Wednesday. She got a new infra red light helmet from Weber laser therapy. I shouldn't have said I wanted to try it. It made my head super angry. I got a headache that was gnarly. I was supposed to go to Mayo Friday morning. I took some tylenol and then on our way we had to go to my mom's house. Chip answered the door confused, I told him I needed the bathroom.  I told Mike I wasn't able to make it to Mayo so we went to Banner Ironwood. They did a ct scan right away and everything looked good. The nurse didn't think the helmet caused the headache. I do!! My head was fine up until then. They gave me a Percocet that didn't touch my headache. Then they gave me a caffeine pill and I had 2 bags of hydration. The caffeine pill helped thank goodness otherwise they wanted to do a blood patch. 

That entails taking my blood, giving me an epidural and putting the blood in there. Again I didn't think I needed it because of Wednesday.  I had Mike get me caffeine pills, and I did other homeopathic things that worked very well. I have been headache free thank goodness. Lesson learned! 

 Brandon and I went for a small walk this morning and then I will get my IV vitamins sometime today. I can't wait because I really do feel so much better, plus it makes a difference with the cancer. It seems to slow things down.  I have to make sure to keep doing it without any breaks, when I do that is when I have changes.  

Here is the new treatment I will be on:

 Tukysa (tucatinib) is a targeted prescription medication used with trastuzumab and capecitabine to treat advanced HER2-positive or low breast cancer, including patients with brain metastases, who have received prior anti-HER2 treatments (Enhertu). It is 2 pills taken twice daily. The capecitabine I will take 4 pills twice daily.  The co payment for that is $650!!! Mayo pharmacy is working with the company to help lower that.  I'm not sure about the tukysa.  I know the trastumab (herceptin) is an infusion that I will get every 21 days. They are making a calendar for me so I don't get confused.   I also had someone from Mayo financial reach out to tell me about a program that will help with the enhertu deductible. They will still help from prior treatments. That would be such a huge help!! I am being reviewed for financial help. I know my bill was up in the $15,000-$20,000 range. I can't even think about it. Mike has already used up all his sick time. The doctors are also being helpful letting me do video appointments when they can so that way it helps with gas and Mike not having to take off work. 

That has been my fun for the past week. 
I need to get some dusting done in my office so I better end this. 
OH! the spinal fluid is negative for cancer cells!!
Love to all!!! :)