After over 4 months in the P/CICU, Covey is being transferred to a rehabilitation hospital. We desperately wish we could say he’s coming home but the truth is that he is still so medically fragile and needs more support than we can give him at home. The hope is that with some intensive therapies his body will be able to get stronger, need less breathing support, and we will be able to figure out home nursing care (as our insurance does not cover it) so that when he does get to come home, he will have all that he needs to thrive. 

This has been the longest and most exhausting road, I think we will ever be on. It is far from over, but we are looking forward to this next chapter and hoping that this one is filled with only growth and not more setbacks *knock on wood*. We are grateful for all the people at the hospital who took such great care of Covey and us. Grateful for the medical team who cared for Covey with so much love and care, who mourned with us, celebrated with us, and cheered us all on. Grateful for the security guards, secretaries, child life specialists, music therapists, nurses, and doctors who made us feel like we were there to hang out with friends—the last 4 months were so much less lonely because of you. Extra grateful for all the people inside and outside of the hospital, near and far, who cared for and lifted up L during all of this. My biggest hope was that her memories of this time were mostly of all the fun and kindness, not that mom and dad were gone so much and Covey was so sick, and because of so many people I think that will be the case. And thank you to all of you who prayed for us, cheered us on, sent notes, packages, meals, treats, and money, and ultimately lifted us up and sustained us during all of this. I will never be grateful for all that Covey endured, but I will always be grateful for the beautiful and kind things and people that showed up in the midst. 

We are waiting on confirmation from the rehab hospital, but the goal is that he will be moved by the end of the week.