Hi everyone! Sorry it’s been awhile since the latest update. Cole had his annual trip to Cincinnati for his “tune-up” as I like to call it. We are happy to report that his scans, labs, procedures, etc look great for the most part. This is all considering the catabolic crisis that he experienced in the spring. The trip itself was very difficult on him. Early mornings, days full of appointments, and poking and prodding. He really struggles with the in and out of the van. His legs and bottom are still sore.  BUT- thanks to our friends and family we getting closer to having that huge burden removed! THANK YOU SO MUCH for all of your support!