Support Registry Update

Weekly Update

In support of
BEElieve In Benny
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Hey everyone! Just wanted to share some amazing news about Benny. He’s been absolutely thriving in therapy lately! 🌟 His engagement and awareness have skyrocketed, and it’s such a joy to see him taking in more of his surroundings each day.

This week, we met with the GI team to tackle some feeding challenges. Benny has been having a tough time with frequent vomiting during feeds, so we are making some adjustments to help him feel more comfortable and improve his tolerance. We’re optimistic that these changes will bring positive results.

Vision therapy introduced a Little Room into Benny’s vision therapy sessions. For those unfamiliar, the Little Room is a specialized environment designed to help children, especially those with visual impairments, explore and interact with their surroundings in a safe and controlled space. It’s essentially a small, enclosed area filled with various objects and textures that encourage sensory exploration and motor development. Benny has been thoroughly enjoying his time in the Little Room—exploring different items, batting at toys, and even grabbing onto his beads!

To our incredible prayer warriors, and supporters—your unwavering love and belief in Benny’s journey mean the world to us. Your support is making these treatments and all of this possible.
THANK YOU! Your messages and prayers uplift our spirits daily!

As we head out today for Benny’s 6th and 7th treatments today, please help continue to pray for continued progress because this highway life is hard on all of us and the improvements make everything worth it! 

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Comments

Worshipleadersue

You all are amazing parents in all aspects and while you are overwhelmed some days with it all…your resilience and dedication to your family and to trusting God with ALL of it…especially when there IS SO MUCH…is truly inspiring! Please if there is Ben small things that others…strangers to you but joined in our prayers for not only Benny but your family…if there other things that could lighten your load…please let those things be known! Who knows what God has in store for those He calls His own children! 🙏🏻👑
  • 9 months ago

Donna Johnson

So glad to hear Benny is doing well in his therapy, praying for Benny and your family. All god is good .
  • 9 months ago