Follow Ups
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#BayleighStrong
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#BayleighStrong
These past 2 weeks have been full of follow up appointments for Bayleigh. We have been super busy!!!!
Since being back home, we have seen a nurse for her g-tube and nutritionist for her feedings. We have seen the ENT for her trach and the pulmonologist for her lungs. We have also seen the kidney doctor for her acute renal failure. We have been to the lab as well for blood draws.
We have got her custom wheelchair which was exciting, she was fitted for that, and we also have did meet and greets with a few other nurses.
It seem to be that the nursing facilities are picking back up, because we have had a few calls from different agencies, so that's awesome as well.
We are continuing with applying for grants, and fundraising for donations. We have received $5,000 from Team Luke Hope for Minds for partial payments on the therapy sessions with Dr. Harch that were already completed. We have a check for $300 coming from Travis Burkhart Foundation. I have applied for several more in which we hope to be funded from them as well. The donations from family and friends were also part of the payment to Dr. Harch and helped supply some of the items we needed for home that Medicaid does not cover. We have still come out of pocket for gas, food, and the fully furnished house that was rented for 2 months during the treatments, as well as, the rest of the items needed for Bayleigh at home.
We are hoping to find funding and raise enough money for Bayleigh to get a home hyperbaric oxygen chamber first. Then we want to go to Florida to a world leader in stem cell therapy. Neuro feedback is also on the list and I will be doing research into that. If we continue to get the funding we need we will then look into red light therapy and possibly the Neurocytronix Technology that is located in Monterrey Mexico; My mother (Paula, Bayleigh's maternal grandmother) is going to follow up with the family she met in NOLA that is taking their son there after they complete hyperbaric oxygen therapy with Dr. Harch. All of these therapies are paid completely out of pocket because Medicaid does not pay outside the State of Michigan for us and they will not pay for any therapies for anoxic brain injury.
Thank you for your continued support, prayers, and donations!!!
#BayleighStrong!
Since being back home, we have seen a nurse for her g-tube and nutritionist for her feedings. We have seen the ENT for her trach and the pulmonologist for her lungs. We have also seen the kidney doctor for her acute renal failure. We have been to the lab as well for blood draws.
We have got her custom wheelchair which was exciting, she was fitted for that, and we also have did meet and greets with a few other nurses.
It seem to be that the nursing facilities are picking back up, because we have had a few calls from different agencies, so that's awesome as well.
We are continuing with applying for grants, and fundraising for donations. We have received $5,000 from Team Luke Hope for Minds for partial payments on the therapy sessions with Dr. Harch that were already completed. We have a check for $300 coming from Travis Burkhart Foundation. I have applied for several more in which we hope to be funded from them as well. The donations from family and friends were also part of the payment to Dr. Harch and helped supply some of the items we needed for home that Medicaid does not cover. We have still come out of pocket for gas, food, and the fully furnished house that was rented for 2 months during the treatments, as well as, the rest of the items needed for Bayleigh at home.
We are hoping to find funding and raise enough money for Bayleigh to get a home hyperbaric oxygen chamber first. Then we want to go to Florida to a world leader in stem cell therapy. Neuro feedback is also on the list and I will be doing research into that. If we continue to get the funding we need we will then look into red light therapy and possibly the Neurocytronix Technology that is located in Monterrey Mexico; My mother (Paula, Bayleigh's maternal grandmother) is going to follow up with the family she met in NOLA that is taking their son there after they complete hyperbaric oxygen therapy with Dr. Harch. All of these therapies are paid completely out of pocket because Medicaid does not pay outside the State of Michigan for us and they will not pay for any therapies for anoxic brain injury.
Thank you for your continued support, prayers, and donations!!!
#BayleighStrong!
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