Good morning Everyone!!

I will not lie, I am struggling with being intentional with updates! Life is chaotic and honestly I am not tech savvy!! But here I am!! Avia is turning 2 on July 7th!! Her birth date is so Beautiful to me- 7.7.2023 the numbers added in her birth year equal 7- she made us a family of 7!! I thank God for our little number 7💗 Avia had speech yesterday with one of her favorite therapists and got to open a few early birthday gifts!! She loves books and being read to!! She has PT today and PT tomorrow at Reliant. We are then taking the rest of July off from therapies!! We got a private donation that is now going to allow for Avia to have two weeks of Specialized therapy come Sept!!! I thank the Lord for His provision and I see his Hand making a way constantly. We went on a small weekend getaway to Plum Island- it was such a gift to be on the beach and to see our kids over joyed and happy!! Taken away by the simplicity and beauty of God’s amazing creation!! We have all had to adapt to life never being quite what it was. The unknowns of Avia’s disease have definitely brought about many hard trials during times where at one time there would have only been room for complete happiness. Our beach vacations have always been a staple for Gratitude and Excitement!! 

Avia struggles with passing bowel movements along, due to her body’s inability to communicate messages to the muscles, motility of her GI tract, and low tone. It can land us in the hospital, it is a BIG deal that we have absolutely no control over. It brings all of us to our knees more than not, it brings her to utter discomfort and screaming. It humbles the soul and reminds us of how much we can only lean in more and trust the Lord’s plan through the pain. Jeremiah 29:11. We had one of these experiences Friday night after spending the day on the beach in the beautiful sunshine!! All of us on our knees praying, thanking God and trusting his provision over Avia’s body, and just holding onto the hope Jesus gives us in this life that everything would be ok and that he would make a way, regardless. And He did!!! This walk is hard and the timing doesn’t always make sense- and planned moments will carry more of an unknown than they ever used too, but all I can do is encourage my children to pray and trust through the hard of this life because God is faithful and He knows what and why!!! Here’s a picture of Avia with her speech therapist Meghan!!