Hello everyone,
Happy Friday!! I wanted to give an update!! Yesterday, June 29, 2025 Avia held and drank her first bottle!! We are beyond words excited!! Pitt Hopkins has affected our daughter’s ability to motor plan all around, unfortunately it has impacted her arms and hands quite a bit. Her legs and ankles still struggle with receiving messages, but not as bad as her arms and hands. Every day and after every therapy, we see her gain. It’s slower than a typical child’s growth but it’s progressing and that and most importantly Our Faith in Jesus are what give us the hope and strength to overcome the daily challenges!  Avia did wonderful and therapy today, she worked hard and giggled while doing so!! Thank you so much for reading and if you haven’t shared her blog, please consider doing so!!!