Hello supporters! 

For those who missed it, I shared an inspiring video recap of Amelia’s first week over on her instagram. Find her @growingwith.amelia to watch how her first week went and some of the exercises that she does in her two-a-day therapy sessions. 

Week 1 ended with severe fatigue, which was expected but heartbreaking to watch her struggle through her last 4 sessions. 💔 All of us desperately needed the weekend. We spent time over the weekend to rest, to explore the coolest downtown park, where Amelia LOVED her very first slide(!), and found some swings so she could enjoy her favorite activity! We were able to pack up and move on Sunday morning from a hotel room to AKAP’s 2 bedroom condo and it has made all the difference in the world for us. We feel rested and ready for this next week ahead of us! 

Her first 2 sessions of the week have been off to a great start. We are still working on sitting, kneeling, and being held - all without throwing back out of it. We are also working on some hands and knees position in preparation for crawling. 

Some of the gains from the first week seem so small, yet also so significant to us. 

⭐️She more easily bends her knees out of extension and into flexion, which is necessary to go through proper movements in our everyday living. Previously her go-to is to lock her knees out, but she is showing signs of relaxing more where she can get into cross legged positions and relax her legs more in general. (Good for her muscles and motor function.) This will help with sitting up from the floor and laying back down safely. This will help with crawling to engage bent knees. This will help with a good walking pattern as she gets older.

⭐️She is noticeably stronger this week and able to hold certain exercises for longer, giving her confidence in her own body. 

⭐️She has learned the AKAP language and is listening better this week and knows the expectation of the therapist and the upcoming exercise more. 

Overall we are excited for what this week holds! 🤩

We appreciate prayers over each of us for strength, stamina, health, wellness, energy, and rest in the in between. 🙏🏼

Talk soon!☀️