^{Support Page Update}

My first update

In support of
Alli & Jeff Winston

Hey Everyone,

We are incredibly grateful for all of your support. This will all go a long way toward Alli’s treatment.
As we continue to research the best next step forward, we are hopeful to find a program that will help to reduce or eliminate Alli’s non-epileptic seizures.
FND is a tricky disorder, as each individual suffers from different symptoms. Not everyone has these full body seizures, so it’s been a challenge to find a specialist who is experienced in this area of FND.
If you know anyone who suffers from this, or any neuro specialists who would be willing to have a consultation, we’d appreciate being connected to them.
Thank you all so much!!
Please keep sharing the link with your online and offline communities and we’ll keep you updated.

Jeff and Alli

Jeff Winston
25 days ago

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Donna Birch 23 days ago

Specific Support & Programs Beyond Standard Care ReACT FND Health Telehealth: ReACT (Retraining and Control Therapy) is a specialized, evidence-based cognitive-behavioral protocol built specifically to target and retrain functional seizures. It is delivered via telehealth across North Carolina by certified FND psychologists, making it accessible without long-distance travel. Multidisciplinary Functional Neurology & Neuro-Rehab: Non-pharmacological neuro-rehabilitation clinics—such as Carolina Functional Neurology Center (locations in Raleigh and Charlotte) or local functional neurology centers like Apex Brain Centers right here in Asheville—focus on neuroplasticity, sensory-motor integration, and autonomic retraining specifically for movement disorders and functional seizures. FND-Informed Physical & Occupational Therapists: Standard physical therapy often accidentally reinforces seizure/movement triggers. Sharing the FND Physical Therapy Clinical Guidelines (available on fndhope.org) can help them locate physical therapists who know how to retrain movement patterns safely. FND Peer Support & Education Networks: Pointing them to FND Hope International or the FND Society gives them access to vetted peer-support networks, patient education toolkits, and provider directories created by people who actually understand functional seizures.

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