Prayers Needed
In support of
Aiden Truong
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Aiden Truong
Good Evening All,
It has been a rollercoaster week for Aiden and us. After returning to the rehab facility, Aiden has been fighting a series of infections. Scans initially did not show where the infection was so the team relied on antibiotics to try to fight them. His body did not respond to the two different types of medication. The doctor was afraid the infection was in his shunt area which would cause several brain surgeries to occur along with a waiting period and drains to continue to balancing the fluid in his head before a new shunt could be placed. Currently, the findings are inconclusive in that area. However, they redid the scans and were able to locate three infections in his abdomen. The infections range from 2 to 6 inches in which surgery will be required to remove as it is a bit hard to reach. The trip to the ER is as a precautionary basis to monitor his vitals closely while he waits for surgery. We pray they can move forward with the procedure to remove the infections as well as prayers the abscesses not to burst; as this will cause major complications since it would be in his blood stream then.
On another note, Aiden was experiencing severe neurostorming episodes throughout the week. These can last from 10 minutes to hours and although medication is available for him during these times, it may not always be effective. He does wake up time to time to see who is with him and as long as it his dad or myself or someone he is familiar with he is calm. If it someone he does not know, he begins to panic a lot. So we try very hard to make sure we are present as much as possible. Today, he also received a visit from one of the support dogs at the rehab place. 'Pilot' was able to calm him when he was experiencing the storming.
Earlier in the week we were told the MRI shows Aiden has a diffuse axonal injury of the brain stem. Which means, there is shearing and tearing of long nerve fibers (axons) when the brain rapidly shifts and rotates inside the skull. We were told there are a lot of tears. There are several outcomes of this type of injury. The doctor shared this made sense because of what we are seeing with Aiden - his day/night is flipped; he wakes up for short periods of time; limited movement with limbs, etc. The doctors still have yet to discuss more in depth what all this means for Aiden as they/we were more focused on his infections. The perplexing side to all of this that will be hard to answer is - why is this now showing on the MRI? He has had MRIs in the past and nothing came up prior to on the images. So doctors do not understand any of this.
Our main focus is to continue to ensure that Aiden is comfortable and pain-free as much as possible. He is unable to tell us this so we watch for signs like heavy breathing, high blood pressure and heart rate as well as high tempature.
It has been a rollercoaster week for Aiden and us. After returning to the rehab facility, Aiden has been fighting a series of infections. Scans initially did not show where the infection was so the team relied on antibiotics to try to fight them. His body did not respond to the two different types of medication. The doctor was afraid the infection was in his shunt area which would cause several brain surgeries to occur along with a waiting period and drains to continue to balancing the fluid in his head before a new shunt could be placed. Currently, the findings are inconclusive in that area. However, they redid the scans and were able to locate three infections in his abdomen. The infections range from 2 to 6 inches in which surgery will be required to remove as it is a bit hard to reach. The trip to the ER is as a precautionary basis to monitor his vitals closely while he waits for surgery. We pray they can move forward with the procedure to remove the infections as well as prayers the abscesses not to burst; as this will cause major complications since it would be in his blood stream then.
On another note, Aiden was experiencing severe neurostorming episodes throughout the week. These can last from 10 minutes to hours and although medication is available for him during these times, it may not always be effective. He does wake up time to time to see who is with him and as long as it his dad or myself or someone he is familiar with he is calm. If it someone he does not know, he begins to panic a lot. So we try very hard to make sure we are present as much as possible. Today, he also received a visit from one of the support dogs at the rehab place. 'Pilot' was able to calm him when he was experiencing the storming.
Earlier in the week we were told the MRI shows Aiden has a diffuse axonal injury of the brain stem. Which means, there is shearing and tearing of long nerve fibers (axons) when the brain rapidly shifts and rotates inside the skull. We were told there are a lot of tears. There are several outcomes of this type of injury. The doctor shared this made sense because of what we are seeing with Aiden - his day/night is flipped; he wakes up for short periods of time; limited movement with limbs, etc. The doctors still have yet to discuss more in depth what all this means for Aiden as they/we were more focused on his infections. The perplexing side to all of this that will be hard to answer is - why is this now showing on the MRI? He has had MRIs in the past and nothing came up prior to on the images. So doctors do not understand any of this.
Our main focus is to continue to ensure that Aiden is comfortable and pain-free as much as possible. He is unable to tell us this so we watch for signs like heavy breathing, high blood pressure and heart rate as well as high tempature.
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