Emergency MRI
In support of
Willow Price
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Willow Price
Yesterday morning I sent Willow’s neurology team a message about some concerns I had about her head. Willow is 8 months post-op from her brain surgery, but I was noticing some changes in her scar and the area surrounding her surgery site.
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Some backstory info for those that don’t know: most babies born with Spina Bifida also have hydrocephalus. Willow had brain surgery when she was 7 months old to create a new drainage route for the cerebral spinal fluid that had built up in her brain.
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About an hour after I sent the message to neurology, they called me to ask some follow-up questions and then requested that I bring her to the ER asap. It was not the phone call I was expecting. But, after walking on this Spina Bifida path for a little while now, I’ve learned that anything is possible and I have to be emotionally prepared for anything.
Willow had a limited MRI of her head, to make sure her cerebral spinal fluid levels were stable and to verify that her ETV (the CSF drainage route made by the surgeon in July) was patent.
After 4 hours in the ER, the doctor finally came to tell me that Willow’s MRI looked “amazing!” 🤯 not only that, but he said that it looked *better* than her last MRI 5 months ago. Truly amazing and unexpected!
All in all, we are thankful! Thankful for an amazing Children’s hospital so close to home. Thankful to have avoided another brain surgery. Thankful that she doesn’t need a shunt. Thankful that our girl is happy and thriving. And thankful for a God who hears our prayers and sees us in our neediness.
Days like yesterday are physically and emotionally exhausting. But since her diagnosis day (September 15, 2024), we have learned that we are Willow’s best advocates. Even though yesterday feels like a day wasted, we know more about Willow and her brain today than we did yesterday. The more we understand her little body and her needs, the better we can advocate for her as she grows and develops.
Lastly, we want to say a huge thank you to everyone following our journey. Your emotional support and financial gifts are blessing our family abundantly, and we are truly grateful. But the greatest gift is your prayers. We believe that God knows Willow’s needs infinitely better than we do, and we trust that He will provide what we need when we need it.
If you have a second, please share this post so more people can follow along and support #TeamWillow
__________
Some backstory info for those that don’t know: most babies born with Spina Bifida also have hydrocephalus. Willow had brain surgery when she was 7 months old to create a new drainage route for the cerebral spinal fluid that had built up in her brain.
__________
About an hour after I sent the message to neurology, they called me to ask some follow-up questions and then requested that I bring her to the ER asap. It was not the phone call I was expecting. But, after walking on this Spina Bifida path for a little while now, I’ve learned that anything is possible and I have to be emotionally prepared for anything.
Willow had a limited MRI of her head, to make sure her cerebral spinal fluid levels were stable and to verify that her ETV (the CSF drainage route made by the surgeon in July) was patent.
After 4 hours in the ER, the doctor finally came to tell me that Willow’s MRI looked “amazing!” 🤯 not only that, but he said that it looked *better* than her last MRI 5 months ago. Truly amazing and unexpected!
All in all, we are thankful! Thankful for an amazing Children’s hospital so close to home. Thankful to have avoided another brain surgery. Thankful that she doesn’t need a shunt. Thankful that our girl is happy and thriving. And thankful for a God who hears our prayers and sees us in our neediness.
Days like yesterday are physically and emotionally exhausting. But since her diagnosis day (September 15, 2024), we have learned that we are Willow’s best advocates. Even though yesterday feels like a day wasted, we know more about Willow and her brain today than we did yesterday. The more we understand her little body and her needs, the better we can advocate for her as she grows and develops.
Lastly, we want to say a huge thank you to everyone following our journey. Your emotional support and financial gifts are blessing our family abundantly, and we are truly grateful. But the greatest gift is your prayers. We believe that God knows Willow’s needs infinitely better than we do, and we trust that He will provide what we need when we need it.
If you have a second, please share this post so more people can follow along and support #TeamWillow
Hannah Price
2 months ago
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desirea stroud
Jessica Dumoulin