Support Registry Update

Delays

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Starting with the good news: Andrew's cerebral angiogram was unremarkable yesterday. They did not find any evidence of infectious aneurysms in his brain, which supports the hypothesis that the heart vegetation is not caused by a bacterial infection. This is the first time he's had a test that came back totally normal.

Not as good news: Some of Andrew's doctors still cannot give it up that it's a sneaky bacterial infection. Even though a cancer-related clot or deposit makes much more sense, they won't rule out bacterial becuase 1) the location of the vegetation on the aortic valve is suspicious and usually where a bacteria would set up shop and 2) the consequences of being wrong are potentially catastrophic. For one, an unchecked bacterial infection could make him very ill once he starts chemo and could create damage in his heart that cardiologists cannot fix.

The plan is to complete a 14-day course of heavy-duty antibiotics. We're already a couple days in, and this can be done at home. However, now that it's Saturday, we're stuck in the hospital until they can contact the at-home IV vendor to get things set up. It's extremely important to not get behind on the medication schedule. The worst part is that staying on IV antibiotics delays starting chemo. He cannot do both at once.

The plan for now is to repeat a transesophageal echo in two weeks in an outpatient setting. We'll hopefully have bloodwork results by then too that doesn't show evidence of a previous bacterial infection. Between antibiotics and his blood thinner, it's possible the vegetation will look better or even disappear by the next echo. This is our prayer.

If it's the same or even worse, I think we'll have several doctors advocating to continue antibiotics for another month. His oncologist will likely fight that, and we'll have to weigh the risk of being wrong about a bacteria that is hiding so well it doesn't definitively show up on any tests with the very real risk of not treating an aggressive cancer for that long.

Andrew's roommate Harold left last night, and someone new moved in. Andrew's currently getting a head CT, and I just arrived at the hospital and am waiting on him to return to his room. I overheard the new roommate telling his friend about Andrewβ€”how much he enjoys talking to him, how nice and smart he is, how heartbreaking his situation is. Of course he is right about it all.

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Comments

Francesco Deluca about 2 years ago

❀️

Lisa Moore about 2 years ago

Rejoicing with you for good news and I am continuing to pray for wisdom, knowledge and skill for the medical staff and for healing for Andrew.

Joni Woolf about 2 years ago

These updates reflect superior medical care. I know the family is grateful for this valiant effort

Debbie Smith about 2 years ago

Praising our Lord for the good news, however small. Praying the doctors will continue working together. I’m sure Andrew is making friends with everyone who he comes into contact with. Try to get some rest before Andrew comes home. Love and prayers for all of you and Andrew’s doctors.β€οΈπŸ™

Karell Roxas about 2 years ago

Come on antibiotics, do your thing and disappear that vegetation. Was he talking to the new roommate about tax law? That always charms the pants off anyone.

Susan Riley about 2 years ago

Keeping Andrew, his sweet family and of course his doctors and care providers in our thoughts and prayers, constantly.

Rachel Ciccarella about 2 years ago

Praying for you guys and love that we can read updates on how Andrew is doing. Praying.

Nikki Crighton about 2 years ago

Elyse, no surprise that Andrew is his wonderful self even in a difficult setting. The SALT practice is thinking of your family and praying every day.

Leslie Lampp about 2 years ago

I go to church with Amber at New Hope and am praying in the mighty name of Jesus for your entire familyπŸ™πŸ™πŸ™πŸ™

Debbie Smith about 2 years ago

Elyse, keep being brave, that’s the best medicine of all for Andrew. We’re praying.

Richard Salsano about 2 years ago

We are keeping you both in our thoughts and prayers on a daily basis. ❀️ Stay strong. πŸ’ͺ🏻 Everyone is pulling for Andrew and I know how mentally tough he is.

Fred James about 2 years ago

Lisa and I are praying our asses off for Andrew and the Steinhaus family!

Mary Alice Cashin about 2 years ago

Andrew and Elyse, wishing you peace and comfort amidst the challenges ahead. Please know that you're in my thoughts and prayers.

Mary Dalal about 2 years ago

Andrew is the epitome of humility and courage. Praying for all of you as well as his doctors for healing.

Chris Reynolds about 2 years ago

Elyse, it is a privilege to stand with you and Andrew through this unexpected and difficult journey. I'm praying for the doctors to know exactly what this infection is and for the Lord to clear it up so he can begin chemo. I know you all through your wonderful Mom. She talks of you, Andrew and the kids incessantly with radiant joy. Her 'pew crew' from Marietta loves you and holds you in heart and prayers.