Support Registry Update

Admitted at NYU

In support of
The Steinhaus Family
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This Monday was the one-year anniversary of Andrew being diagnosed with cancer. We are marking the date by doing many of the exact same things we did during this week last year.

Last night around 8pm, we went to the ER after Andrew developed a fever. His body temperature had been elevated for a few days, but never hit 100.4+ until yesterday. We originally thought it was a side effect of the injections used to boost his white blood cell count. But in the early evening, he had a 101.9 fever and the on-call oncologist urged him to go to the ER.

Andrew was immediately triaged due to suspicion of a "neutropenic fever," or when a fever occurs in someone with low white blood cells (specifically neutrophils), which are needed to fight infections. He was given a private room in the ER with a door to separate him from other patients—one bonus of being one of the sickest people in the place.

The doctors started looking for signs of infection, and we got admitted to the oncology floor around 2:30am. That's a record-fast turnaround for us from ER to admission. This morning, his blood cultures showed growth of a bacteria called streptococcus pneumoniae, confirming a bloodstream infection. This particular finding was surprising because it's relatively rare, and there are effective vaccines against it (though probably not given when Andrew was a kid). The fact that Andrew would surprise doctors with an unusual outcome is totally unsurprising to us. 

Fortunately, streptococcus pneumoniae is typically highly sensitive to treatment, and he's been getting broad-spectrum IV antibiotics while we await more specific bloodwork that tells us the most effective type of antibiotic. Soon, he'll get a CT to try and identify the source of the infection (e.g, something on his heart, pneumonia in the lung, etc.). A bad result would be to see something in a bone. Andrew's fatigue is so severe today that he hasn't felt up to going to CT yet but hopefully will soon.

The crazy thing is that Andrew was supposed to get chemo yesterday, but didn't due to a scheduling error. Had he gone to NYU and the fever not been present (which it wasn't that early in the morning) and he got chemo, it could have sent this infection out of control and created a dire situation. We are so grateful that didn't happen, and we now have a chance to treat it.

We are likely staying at the hospital for several days at least. After looking at imaging, the doctors will want to rerun blood cultures that come back clean. From there, we'll make a plan about how long to take the antibiotics, how to take them (oral or through a midline or PICC line), when he can go home, and when he could resume chemo, which we obviously need to do ASAP.

We'll keep you all updated. Thanks to those of you who are already praying. That lifts us up.

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Comments

Donna Thompson

Praying for Andrew and family. So sorry he is having to go through this.
  • 6 months ago

Kristin.g.lambert

Ugh - praying for you all! And hoping that Andrew's puppy friends from the last stint make their rounds.
  • 6 months ago

Deb Long

Sending prayers and hugs to all of you. I can only imagine how difficult this is and just want you to know that I'm thinking of all of you.
  • 6 months ago

Francesco Deluca

Hoping this rollercoaster ride has more peaks and less valleys to come. Hang in there and hopefully can see you guys soon.
  • 6 months ago

Teri Garner

Constantly praying all my waking hours. My faith remains for Jesus to give him his miracle healing and a long healthy life on this earth with his family. All my love
  • 6 months ago

Luanne Atkins

My heart goes out to you and Andrew, the kids. I feel I know you even thou we haven't. Dionne keeps us posted. We love you all and pray for you daily.
  • 6 months ago

Bonnie Ballard

Sending lots of prayers and strength your way from the ATL.
  • 6 months ago

Debbie Smith

Praying for all of you and wishing Andrew a speedy recovery, so he can kick this C to the curb. 🙏❤️
  • 6 months ago

Teri Garner

Michael Burris is praying for you every second.
  • 6 months ago

Teri Garner

James 5:15 And the prayer offered in faith will make the sick person well.
  • 6 months ago

Bob Cagle

StoneBridge sent out a prayer request from your mom yesterday so we had information to pray about as we continue the prayer journey for Andrew - but the specifics from your post are so helpful in understanding what’s going on. God certainly prevented the chemo treatment. May His protection and healing surround Andrew. Love you.
  • 6 months ago

Mary Alice Cashin

Offering up prayers of healing and comfort for Andrew and family!!
  • 6 months ago

Liezl Walker

You got this Andrew! Praying for you and your family.
  • 6 months ago