A learning experience
The Steinhaus Family
We’re having a good day. Andrew isn’t nauseated and has some energy. We started our day with a coffee on our new patio, did some move-related tasks in the old apartment, then got ready to go into NYU’s infusion center to get IV fluids to hopefully shore him up for the weekend. On our drive in, Andrew said he was craving something savory. He’s not often hungry, so as soon as we parked, we ran to a hole-in-the-wall Mexican place and ordered before he could change his mind. He had half an enchilada platter, which was great. We’ll remember this place as a treat on chemo days.
One tough thing about *gestures to all this* is not knowing what kind of day we’re in for. Wednesday had been Andrew’s best day yet, buoyed by the fluids he got at Sloan on Tuesday. But then yesterday, moving day, was unexpectedly hard. He threw up in the morning, then was queasy, tired, and grouchy the rest of the day. The doctors told us it was possible to have another wave of side effects about 5 days after chemo, so maybe that's what it was.
As the palliative care doc told us on Wednesday, this entire first round of chemo is a learning opportunity for us and them—which symptoms Andrew is sensitive to, which meds work and which don’t. We’re hoping that helps the doctors recalibrate both the chemo dosage and anti-nausea meds for next week’s infusion.
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Richard Salsano
Karell Roxas
Kimberly Yates