Support Registry Update

A learning experience

In support of
The Steinhaus Family
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We’re having a good day. Andrew isn’t nauseated and has some energy. We started our day with a coffee on our new patio, did some move-related tasks in the old apartment, then got ready to go into NYU’s infusion center to get IV fluids to hopefully shore him up for the weekend. On our drive in, Andrew said he was craving something savory. He’s not often hungry, so as soon as we parked, we ran to a hole-in-the-wall Mexican place and ordered before he could change his mind. He had half an enchilada platter, which was great. We’ll remember this place as a treat on chemo days.

One tough thing about *gestures to all this* is not knowing what kind of day we’re in for. Wednesday had been Andrew’s best day yet, buoyed by the fluids he got at Sloan on Tuesday. But then yesterday, moving day, was unexpectedly hard. He threw up in the morning, then was queasy, tired, and grouchy the rest of the day. The doctors told us it was possible to have another wave of side effects about 5 days after chemo, so maybe that's what it was.

As the palliative care doc told us on Wednesday, this entire first round of chemo is a learning opportunity for us and them—which symptoms Andrew is sensitive to, which meds work and which don’t. We’re hoping that helps the doctors recalibrate both the chemo dosage and anti-nausea meds for next week’s infusion.

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Comments

Richard Salsano

Every day is an adventure. Sometimes the adventure goes according to plan. Celebrate those days. Other times, one wrong turn can make you feel like the day has turned into a misadventure. Don’t let those days get you down and impact your next adventure. Staying positive on the dark days is easier said than done but Andrew is one of the strongest people I know and also has so much love and support from his family and friends. Sending extra positive thoughts your way (just in case you need them). 💛
  • over 1 year ago

Karell Roxas

Here's to more good days and more enchiladas. <3
  • over 1 year ago

Kimberly Yates

You two look great which is astonishing and remarkable! I love you. Praying.
  • over 1 year ago