Support Registry Update

In Support of The Perritt Family

In support of
The Perritt Family
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They got the IV and picc line in her 2 days ago and all has been well. When the surgeon called me and told me the risks, I interrupted him and said listen, I want you to do any and everything to save my baby. I don't care where you get the lines in at, just get them. The surgeon said yes ma'am I will do any and everything. And it was successful. Since all of the infections she had her kidneys have stopped functioning completely. She has severe edema.(swelling) She has had zero urine output for almost 3 days now. Since then they have lowered her amount of fluids to bare minimum and have stopped feeding. They put her on lasiks to help try to get the fluid off of her and so far she has had 6 rounds of it and it hasn't worked at all. So now they started her back on Dopamine, blood pressure meds to see if it will help. As far as the staph infection, she has been negative for 2 days now. She is still positive for the yeast infection on her skin and in her blood. Last night they did an ultrasound on her brain again, because they are concerned that the yeast has spread to her brain. They told me yesterday if the yeast has spread to her brain, it can be extremely fatal, and if it isn't fatal, it will cause brain damage and lifelong complications. I don't know all the details of it yet, I'm scared to google it and the nurses really won't give me a definite answer on what happens if there is yeast on the brain. All they keep telling me is we don't want yeast on her brain and we are going to hope and pray that it isn't. 🙏 When I am there, I hold her sweet hand and I let her know I love her and I'm there. The second I let go, she starts moving around kicking her feet. Squinting her eyebrows like she is trying to scream and she will open her eyes looking for me. I immediately go right back in the incubator and hold her sweet hand. I haven't ever really been as close with God as I should be, but I do know he is real and he is the only one who can heal my baby. I've prayed and I've screamed, I've cried, I've begged God to please save my baby. Please don't give her to us and then take her away from us. We are doing everything right in our lives. We have changed our lives so much for the better. We are married, she wasn't born out of wedlock. Anything I can think of telling God, I promise I have. 🙏 I believe in the power of prayer and I know I've been asking everyone to pray and I know people's people are praying for my sweet baby but we need them prayers now more than ever! Please pray for strength for Baby Bella and for us. Please pray for God to heal her. Please pray that we get to bring our sweet baby home and live and enjoy life with her. Please pray for any and everything we can think of.  The nurse today said we are at a point of life or death. My heart is breaking more and more every day. It's hard to stay strong. I can honestly say I've never felt more broken in my life and I know I can speak for Colten too. 

4/27/2024

Yesterday the doctors asked us to sign a DNR because Bellas kidneys havent worked for 4 days. They said once the kidneys go, other organs follow. We said they better not give up on our baby. Bella will let us know if she cant fight anymore. There is no decision to be made. All we can pray for right now, is for her to pee.  She has beat so many odds. I have faith that our sweet baby is a fighter and will fight her way through this.

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Comments

Ashley Ashmore

Oh mama I am praying so hard for sweet Bella and for your family.
  • over 1 year ago