Support Registry Update

One Strong, Brave, Determined Day at a Time

In support of
The Moody Family
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Chemo is horrid. It feels like someone has poisoned you, because, well...that's what chemo is, a poison that heals.

It's not so much the individual symptoms that get me, but the overall languishing in nebulous pain and ick that are physically and emotionally hard. Even Stephen feels down on the days when I'm bedbound.

Here is a look at what my chemo cycle looks like right now.

Day 1: Infusion Day--pretty good day except for the cold sensitivity
Day 2: Pump Day--inconvenient, but pretty good day because the steroids give me a boost of energy and symptoms are minimal
Day 3: Pump Disconnect Day--mostly good, although the fatigue sets in really hard after the pump is disconnected (with the IV hydration, my energy level was a 2 out of 10 instead of zero)
Day 4: Incapacitated--day spent in bed, eyes closed, trying not to move
Day 5: Incapacitated--day spent in bed, eyes closed, trying to keep hope
Day 6: Non-Functional--I can walk around the house a bit, shuffle around the block, and shower, but mostly I lie in bed
Day 7: Functional, but Fatigued--I get up and do a few things and then lay back down all throughout the day
Day 8: Human Again--more foods sound good to me, though I do take some anti-nausea meds. I went to in to work today!
Days 9-14: New Normal--I can resume most activities, but try to conserve my energy for family, work, and fun

Thank you for each and every reminder that you are thinking of me and praying for me. I am blessed by your texts and notes all the time, but especially on the days when all I can do is lie in bed.

I'd love prayers for Days 4-6 since it's truly depressing to think of enduring more chemo treatments on those days. Each treatment I do makes it more and more likely that this terrible disease won't rear it's ugly head again, so I'd like to make it through as many of the twelve that I can. My next infusion day is Wednesday, the 15th.

This time around, I learned that I need to plan fun things to do on days when I feel good. Otherwise, it's going to be a very long and dreary 6+ months of treatments, surgery, and recovery. With my aunt in town for several weeks, we're planning some fun outings during the next few days. Having Aunt Debby here during the worst of days has helped lift the burden Stephen and I feel for the kids. Such sacrificial love she's displaying!

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Comments

Lisa DiTommaso

Thanks for letting us know what days are extra rough. I think that is a great idea to plan fun things on the days when you have more energy. We are praying for you as you ride this cycle for a number of months. I really am sorry you are going through this Liz. You are so strong, and when you are weak, He sees you and is with you.
  • 11 months ago

Mary-Alice DeBoer

I really appreciate your being candid about this Liz. I always knew that chemo was hard (a ridiculous word to use in this context), but you taking the time to explain what hard is like helps me to understand and pray more specifically.
Praying now for you, that you can somehow enjoy the “good days”.
  • 11 months ago

Rosemary Clow

Thank you, Liz. This is very helpful to know how to best pray for you each day. I will save this and please remind all of us when the cycle starts again which is probably 1/29.
We love you and are praying for you and your family.
  • 11 months ago

Gohike4fun

I don't know how to put this in words but I hope this works. Every busy day I find myself accidently rubbing my hard, crustily, peeling skin on my left cheek. I restrain myself from picking at the peeling skin by believing the salve is working to kill the skin cancer cells. I send my hopes and best wishes that your treatment is finding and killing all of your nasty cells too. I am so glad you are getting so such support. Even tho I'm not sending you my wishes by email to you, I do want you to know my red, ugly cheek is helping me to send my mental wishes to you each day. I love you Elisabeth. I will be sending all my wishes to you each day.
  • 11 months ago