Praise the lord, we are home. Since April 27th we have spent 35 nights in the hospital. Thankfully, this round did not include any time in the ICU which is a blessing. Here’s a recap of some of the main events from this hospital stay:

Phew.

We were discharged on Wednesday and as of now the fluid in Hollis’s lung has improved significantly and there are no current signs of infection. We were discharged on her current medication regime along with two added oral antibiotics. In total, Hollis takes around 15 medications, some multiple times a day. I will say she is an absolute champion when it comes to taking meds and I am so grateful for that.

We saw nephrology before being discharged since Hollis’s kidneys have not yet returned to their pre-transplant function. We learned that it is possible they might not return to where they were prior due to the amount of damaged sustained after her first transplant. The plan for now is to continue to watch her numbers over time and see how they trend while trying to get her to drink as much water as possible and keep her blood pressure in a good place. She had labs drawn today which will help us determine their true current status. These results should be back by Monday. Please pray for improved kidney function-- my brain can't even go to worst case scenario (though we are very far from there). 

Being home always feels good, but it’s hard not to worry about when we might be rushing back to the hospital. Fearing the unknowns along the way is overwhelming to say the least, but we are doing our best to not let this control our lives. On Wednesday when we were being discharged I asked our provider if she thinks there will come a time I am not constantly living in fear for my child’s life. She was very genuine in her reply and said with everything Hollis has been through it is going to take A LOT of time and the fear will always be there, it will just become lessened with time. She said before you know it she will be celebrating her liver-anniversary and you will look back at this time and wonder how you made it through it. 

I am ready for that day. Please continue to pray for Hollis and her journey. She is such a brave little fighter.