Support Registry Update

8/23 Discharge Date!

In support of
The Lange Family
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Gestational age: 39 weeks, 5 days 
Day of life: 104 
Beckett: 6lb 
Juliette: 7lb, 11oz 
 
This past week has been a pretty boring one, which we are very thankful for! Beckett started getting milk again last Sunday and has been going up on feeds every day since. He has been tolerating it really well, and his incision has been looking better each day! One of Beckett’s eyes got a little worse this past week, but his doctors attributed it to inflammation from surgery and had expected that it might get worse before it eventually gets better. He will also be on the list to get moved over to the Children’s Hospital NICU when his breathing is in good enough shape, so we’ll look forward to that. 
 
Juliette had her repeat echo on Friday since she started her stronger diuretic, and the results were good enough to set a discharge date for next week! This little girl is busting out of the hospital (and then going straight back into the hospital to hang out in Beckett’s room)! We have been very excited and also very nervous about this big change, but future us has always been capable of figuring things out, so we’ll be okay. 
 
Our situation won’t change much with Juliette’s discharge. We’ll continue living at the Ronald McDonald House, now with Juliette. We’ll continue coming to the hospital everyday, but with all four of us in Beckett’s room. We’re looking forward to being together all day. We are planning on going home this weekend to get some nursery stuff put together. We won’t need it for a while, but it will be nice to have the house a little more prepared for our eventual trip home. 

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Comments

Sarah Cassella

This is all so fantastic to read! Go Beckett and Juliette!!
  • 4 months ago

Debbie Gross

Yay! So happy you will all be together ❤️
  • 4 months ago

Cindy Broadie

We are so happy to read this exciting update! Let us know if there is anything you need. We are always ready to help.
  • 4 months ago

Cindy Broadie

We are so happy to read this exciting update! Let us know if there is anything you need. We are always ready to help.
  • 4 months ago

Ban1064544

Yay! This is great news!
  • 4 months ago

Debra Kornberg

I’m so delighted by this news. Blessings on your next chapter.
  • 4 months ago

Tabithaespina

The current and future you’s are amazingly strong!!! So excited for Juliette to bust out her moves soon! Sending love! 💕
  • 4 months ago

Dan Maeltzer

Wonderful news❤️ 🙏what a big step forward! Enjoy your time together as a family ❤️🙏
  • 4 months ago

Mede2742

That is such good news, and how exciting! There is light at the end of the tunnel and you all deserve it!
I continue to pray for you all every day!
  • 4 months ago

June Stecklein

So happy to hear Juliette is being discharged and Beckett is getting stronger every day. Prayers really do work.
  • 4 months ago

Kim Moriarity

What fantastic news!! I continue to hold you all in prayer, daily. Jen you have true tiny warriors!
  • 4 months ago

Julie Gordon

Such great news! Amazing how sometimes boring is a good thing. Can’t wait to see all four of you together in Beckett’s room❤️
  • 4 months ago