Support Registry Update

10/15 Nasal Cannula & Playtime

In support of
The Lange Family
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Gestational age: 47 weeks, 2 days 
Adjusted age: 7 weeks, 2 days
Day of life: 157
Beckett: 9lb 
Juliette: 10lb, 12oz 

Beckett made it to nasal cannula last week! His oxygen flow is still a little high to go home on, but they are planning on weaning it when his eyes make some progress. He has been stuck at the same ROP numbers for a while (zone 2, stage 2), but they see a tiny bit of improvement each week. He is still working on eating, but that’s also a slow process. He is up to 6 of 8 oral feed attempts per day. If he’s ready to go home based on all other facets, he could potentially be sent home with his nasal feeding tube until he gets the hang of 100% oral feeds. Eyes and feeding are the two things that slow down progress the most, so we’re just being patient. They’ve also started weaning Beckett on to a formula that he now gets 4 of his 8 feeds per day. 

Juliette has been steadily gaining weight, almost an ounce per day, despite us still trying to find a formula that agrees with her system. She enjoys her stroller rides to see little-big brother at the hospital everyday. 

The twins have been getting so big and loving playtime! We got some toys and a play mat from physical therapy, so we have been putting both babies together on the floor and playing. It has been really nice to interact with them more and let them interact with each other (even though they refuse to look at each other at the same time). I have also recorded myself reading a few books, which the music therapist at the hospital loaded on to an iPod that the nurses play for Beckett when we’re not there. 

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Comments

Terri Dole

It all sounds like everything is going as it should! How wonderful! And it sounds like it shouldn’t be long before they get to come home with you and Dad!
  • 2 months ago

Rebecca.ludin

Grow babies, grow! So glad to read about their progress. Love the book recording idea and bet you make a great audiobook narrator :) I hope Beckett gets to come home soon!
  • 2 months ago

Sncassella

This is such great news and I’m so happy for all of you!! Keep up the good work!!
  • 2 months ago

Trblx3

They are beautiful! 🙏🏻
  • 2 months ago

Debbie Gross

Getting cuter every day!
  • 2 months ago

Mary Whitmer

I pray for these beautiful babies every day.sending a big hug!
  • 2 months ago

June Stecklein

So many positives! Improving every day. Thanks for the update
  • 2 months ago

Melissa Haley

I’m so glad they can play and be together and are doing so well!!! Continuing to pray for your babies!!!
  • 2 months ago

Molliej321us

My goodness they have grown Jen! Such a wonderful sight to see. Such precious little ones who have made a good fight in this new world to them. Hope things continue to move in the right direction for your little family. Prayers daily for growth and development for Beckett and Juliette!💙🩷
  • 2 months ago

Tabithaespina

Such happy kiddos enjoying playtime together! ☺️ The more they grow in health and cuteness, the more we grow in joy!!!!!!
  • 2 months ago

Mede2742

Wonderful progress! I see a light at the end of the tunnel! You all have been through so much, I hope you can all go home soon!
  • about 2 months ago