Support Registry Update

November 30th

In support of
The Heath Family
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We're now halfway through interim maintenance with two hospital admissions complete. Sky has done brilliantly on both admissions, and been able to be home much quicker than planned. 

We have had one delay to the schedule and Sky's next admission is this coming Friday. We have been told to stop her daily oral chemo (Mercaptopurine) at home as her blood counts are low right now and she is struggling with mouth sores as a result of it. This is to give her mouth some time to recover and also to help her to make the minimum counts necessary to be admitted on Friday (She needs a minimum absolute neutrophil count of 750 or higher, and right now she is at 400).

Sky's skin is very sensitive in this phase as a result of the Methotrexate and she's been struggling with a rash but that has cleared up over the last few days also. We're about to spend a few nights away, which will be a nice short break and the boys are excited to visit an old aircraft carrier whilst we are there. Elijah is especially excited to "finally get a hotel breakfast." Apparently he's been waiting ages for the event. 

So after Elijah has his belly full of hotel breakfast and he and Nathan have stormed a retired US Navy carrier then it will be back to reality and the next hospital admission (in God's timing). 

All our love

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Comments

Karen Palfreyman

Thank you for the update Michael. Praying for your family time away that it lifts you all as a family. Also praying for Sky’s next treatment on Friday. Blessings to you all.
  • 16 days ago

Dibarrett

Hope you can enjoy a healthier Christmas with Sky she is a strong little girl as you as a family are too . May all prayers be answered 🙏
  • 16 days ago

Angela Rogers

Thinking and praying for you all that sky continues to be strong and a little fighter xx
  • 16 days ago

Janet Hunter

hi Michael thanks for Sky's progress update and so sorry to read of the side effects on her skin and blood counts ... the break away will renew all your strengths ... I'm with Elijah on the anticipated excitement that is breakfast on holiday ... hope you all have a lovely few days away , ready for the second half of Sky's continuing treatment ... much love and hugs to you all xxxxx 🏞️✈️🥞🍳
  • 16 days ago

Chris Gurr

Continuing to pray for you all, and rejoicing that you can have a break away from hospital routines. I hope the breakfasts are suitably impressive! May you continue to know God's blessings as you go through this time together.
  • 16 days ago

Gary Heath

Mike your all in our thoughts and prayers. Love you ❤️ all
  • 12 days ago

Lynn Dauson

Thank you for the update Michael, sorry to hear Sky’s having trouble with mouth sores and with her skin, she’s a little fighter bless her, hope you have a lovely little break together, and hope Elijah enjoys a lovely hotel breakfast, love and best wishes to you all, take care xx
  • 6 days ago