Sky started consolidation last Monday which meant a new list of medicines/chemo in this new phase. She was struggling at the beginning of the week and on Monday night vomited every 5-10 mins from 10pm until 4am and then every 30 minutes until 8am. After some more vomiting over the next few days the doctors decided to make a change to the medicine on her hospital visit on Thursday and she has been relatively fine since although is still on nausea meds around the clock and will continue to be until the end of consolidation.

She will be back in the hospital each Monday and Thursday now for the next 2 months. She is coping well but to the visits are quite intense at the moment. I have the boys whilst working at home as my Nan went back to the UK on Tuesday of this past week, and they do a good job of looking after each other despite a few arguments here and there! 

We did manage to make it to the zoo just before the start of consolidation and had a really nice finish to lovely mini break whilst my nan was still here. We won’t be able to go to church or do certain things whilst Sky is in consolidation with her immune system being very weakened but she is still able to go to the pool which she seems very pleased about. 

Back to the hospital at 7am tomorrow and another week to take each day at a time and we remain ever thankful for the care that Sky continues to receive from everyone.

Love to all
Michael, Poppy, Nathan, Elijah, and Sky



Sky’s meds for consolidation: 
Cytoxin - chemo drug via her port once per month
Vincristine - chemo drug via her port twice per month
Methotrexate - chemo drug via lumbar puncture into her spinal fluid once per week
Calpeg - chemo drug via her port once per month 
Mercaptapurine - chemo drug given orally once per day
Cytarabine (Ara-C) - chemo drug given by sub-cutaneous injection once per day, 4 days in a row, in the beginning 2 weeks of each month (16 total injections over the 2 months)
Micafungin - anti-fungal medicine given as a precaution twice per week via her port whilst her immune system is low
Cefixime - antibiotic given orally twice per day each day as a precaution whilst her immune system is low
Septra - antibiotic given orally twice per day on weekends only (given throughout all phases of her treatment) 
Odansetron (Zofran)- anti-nausea medication given around the clock each 8 hours orally 
Some Benadryl to help with nausea also thrown in orally from time to time.
EMLA cream - numbing cream applied to the skin around her port every time she is going to the hospital (so twice per week at the moment)