Baby John
In support of
The Gurbal Fam
View Support Registry
The Gurbal Fam
A backstory- for anyone wishing to read.
Our John was born on Saturday, January 18th, and a late pregnancy complication with mom. He came via c-section and required NICU care from birth for some breathing issues. His breathing issues improved around day 3, but questions arose when they noted an abnormal gum pattern in his mouth in addition to recurrent airway swelling. After a CT and MRI of his head, it was found that he was born with 2 midline deformities- single median central incisor and nasal pyriform aperture stenosis. (An extremely small nasal airway and a single front tooth.)
He was discharged and we planned to follow up with ENT to monitor his nasal stenosis.
After just 4 nights at home, John went into respiratory distress and was once again in the hospital. The swelling and stenosis in his nose was limiting his ability to eat, and ENT opted to surgically expand his airway- he went to surgery that same day. At 16 days old, John still weighs barely over 6 pounds and improving his airway is vital to him gaining weight and strength.
After a successful surgery and an uneventful night following the procedure, John once again went into respiratory distress, prompting his immediate transfer to the ICU for more oxygen support.
He now has a partially collapsed lung, possibly pneumonia, but is resting peacefully on his increased oxygen.
Our John was born on Saturday, January 18th, and a late pregnancy complication with mom. He came via c-section and required NICU care from birth for some breathing issues. His breathing issues improved around day 3, but questions arose when they noted an abnormal gum pattern in his mouth in addition to recurrent airway swelling. After a CT and MRI of his head, it was found that he was born with 2 midline deformities- single median central incisor and nasal pyriform aperture stenosis. (An extremely small nasal airway and a single front tooth.)
He was discharged and we planned to follow up with ENT to monitor his nasal stenosis.
After just 4 nights at home, John went into respiratory distress and was once again in the hospital. The swelling and stenosis in his nose was limiting his ability to eat, and ENT opted to surgically expand his airway- he went to surgery that same day. At 16 days old, John still weighs barely over 6 pounds and improving his airway is vital to him gaining weight and strength.
After a successful surgery and an uneventful night following the procedure, John once again went into respiratory distress, prompting his immediate transfer to the ICU for more oxygen support.
He now has a partially collapsed lung, possibly pneumonia, but is resting peacefully on his increased oxygen.
Comments