In Memory. From the Coalition for Hemophilia B
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The Family of Lynn Malec
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The Family of Lynn Malec
In Memory of Dr. Lynn Malec
It is with profound sadness that we share the passing of Dr. Lynn Malec, MD, MSc, a beloved physician, researcher, educator, and friend to our community. After a devastating health event, Lynn died peacefully, surrounded by those who loved her deeply. As shared by Laura C. Michaelis, MD and Joshua J. Field, MD, MS, Dr. Malec joined the Medical College of Wisconsin, Versiti Blood Research Institute, and Children’s Wisconsin in 2016, where she quickly became an invaluable member of multiple teams. She served as Associate Professor of Medicine and Pediatrics, Senior Medical Director of the Versiti Medical Sciences Institute, Medical Director of the Versiti Comprehensive Center for Bleeding Disorders, and Program Director of the Hemostasis and Thrombosis Program within the MACC Fund Center.
A master’s-trained clinician-scientist and clinical trialist, Dr. Malec specialized in hemophilia and rare bleeding disorders. Her groundbreaking research focused on hemophilia inhibitors, novel therapies, and treatments for women and girls with bleeding disorders. She was instrumental in bringing clinical gene therapy for hemophilia to Wisconsin, leading to curative treatments for patients across the Midwest and beyond. Her work included participation in numerous national and international clinical trials, and she published significant research, including a study on factor VIII therapy for pediatric patients in the New England Journal of Medicine.
Beyond her clinical excellence, Dr. Malec was a passionate educator and mentor whose impact resonated throughout pediatric and adult training programs. She conceived and developed the “Plasma Academy,” a free, intensive two-day educational program for hematology fellows that has now trained 35 fellows from 19 institutions across five years. Lynn managed every aspect of this fully grant-supported program, from securing funding to developing curriculum to recruiting faculty.
Nationally recognized for her expertise, Dr. Malec lectured widely on the clinical practice of hemophilia and served as principal investigator or steering committee member on major research initiatives. She was particularly dedicated to shared decision-making with patients and developed a structured framework for empowering hemophilia patients in their healthcare decisions.
Dr. Malec also served as medical director of Camp Klotty Pine, a summer camp where children with bleeding disorders learned to manage their disease and medications while enjoying activities with friends. Her commitment to her patients extended far beyond the clinic walls.
While her professional accomplishments were extraordinary, those who knew Lynn remember her warmth, collaborative spirit, and unwavering commitment to patient-centered care. She was a woman of intelligence, spark, and love who approached others with curiosity and an open mind. Her contagious laugh and the welcoming spaces she created, both professionally and personally, touched countless lives. Her legendary karaoke nights at ASH conferences brought joy and connection to colleagues from around the world.
Lynn’s vivacity, friendship, and contributions will be profoundly missed by colleagues, trainees, patients, and partners across the Medical College of Wisconsin, Children’s Wisconsin, Versiti, and the broader hematology community. We are all better for having known and worked with her.
Her legacy lives on in every patient she treated, every fellow she mentored, and every life she touched with her dedication to advancing care for those with bleeding disorders.
https://www.hemob.org/
A master’s-trained clinician-scientist and clinical trialist, Dr. Malec specialized in hemophilia and rare bleeding disorders. Her groundbreaking research focused on hemophilia inhibitors, novel therapies, and treatments for women and girls with bleeding disorders. She was instrumental in bringing clinical gene therapy for hemophilia to Wisconsin, leading to curative treatments for patients across the Midwest and beyond. Her work included participation in numerous national and international clinical trials, and she published significant research, including a study on factor VIII therapy for pediatric patients in the New England Journal of Medicine.
Beyond her clinical excellence, Dr. Malec was a passionate educator and mentor whose impact resonated throughout pediatric and adult training programs. She conceived and developed the “Plasma Academy,” a free, intensive two-day educational program for hematology fellows that has now trained 35 fellows from 19 institutions across five years. Lynn managed every aspect of this fully grant-supported program, from securing funding to developing curriculum to recruiting faculty.
Nationally recognized for her expertise, Dr. Malec lectured widely on the clinical practice of hemophilia and served as principal investigator or steering committee member on major research initiatives. She was particularly dedicated to shared decision-making with patients and developed a structured framework for empowering hemophilia patients in their healthcare decisions.
Dr. Malec also served as medical director of Camp Klotty Pine, a summer camp where children with bleeding disorders learned to manage their disease and medications while enjoying activities with friends. Her commitment to her patients extended far beyond the clinic walls.
While her professional accomplishments were extraordinary, those who knew Lynn remember her warmth, collaborative spirit, and unwavering commitment to patient-centered care. She was a woman of intelligence, spark, and love who approached others with curiosity and an open mind. Her contagious laugh and the welcoming spaces she created, both professionally and personally, touched countless lives. Her legendary karaoke nights at ASH conferences brought joy and connection to colleagues from around the world.
Lynn’s vivacity, friendship, and contributions will be profoundly missed by colleagues, trainees, patients, and partners across the Medical College of Wisconsin, Children’s Wisconsin, Versiti, and the broader hematology community. We are all better for having known and worked with her.
Her legacy lives on in every patient she treated, every fellow she mentored, and every life she touched with her dedication to advancing care for those with bleeding disorders.
https://www.hemob.org/
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