With a medically complex child, there is always something going on. Just sometimes, things are a little quieter. Sometimes in those quieter moments, it can feel just as heavy. SupportNow, while a newer experience for me, is something I am now very thankful for, as it doesn't forget about caregivers and families in any of the moments. I look forward to being able to share updates about Isaiah here and also being able to use it as a means of support for our family moving forward, while also being able to share with other families who may need a similar type of support as well. 

A praise for today is that for the first time since Isaiah's back surgery in October he was in his stander and also for the first time he tolerated his TLSO brace enough to enjoy his stander for more than just a few minutes!