Support Registry Update

Callum Summer Update!

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The Cutler Family
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We have been so thankful for those of you who have helped to make Callum's intensives and testing possible through your support of time, prayer, money, etc. Callum continues with biweekly physical therapy sessions, daily exercises, nutrients, and regular chiropractor appointments. Each day, Cal has about 30 minutes of red-light lasering done as well. In June, Callum had a neuro-zoomer blood test done which can help identify other viruses or causes of inflammation in the body or brain. There were some underlying viruses found which he takes supplements to treat. He currently follows a gluten and dairy free diet as well to decrease any additional inflammation. 

He has started evaluations through Grant Wood AEA’s early access program to start preschool through Linn-Mar in October. If he qualifies, he will have an associate with him during the day to help with the physical limitations he currently has, and since he would be a year younger than the other students, they will help with other tasks Cal has not mastered. This extra time in the classroom will help Callum to prepare for that step in the future potentially doing it alone and also allow someone to be working with him more consistently during the day for the school year. 

He had a follow up at the Center for Disabilities and Development, CDD, a few weeks ago. Overall, he has been making progress but there is a lot of work to still do. After seeing multiple specialists, Callum was referred to a specialized muscle tone doctor who we will see later this year. He also completed the most in-depth level of genetic/DNA testing that the University of Iowa offers. Part of the genetic testing will show any potential health factors he could face down the road based on his genetic make-up and comparing it with others. We will discuss the findings with one of his doctors this week. While we know we may not get an exact answer for his delay, we are wanting to rule out any potential genetic factors that could also impact his sister and her development. Through the CDD, Callum will be starting hippotherapy at the end of August (horseback therapy, great for hip mobility and core strength). We are very excited about this! 

Within just over a year of starting Callum PT and doctor journey, he has seen about eleven different clinics, special teams, pt programs, etc. It can still feel overwhelming at times when considering the different approaches and options of such an extensive team. We are grateful for all that they are doing in order to best help Callum in his day-to-day life, and we are incredibly thankful for you all who care so much about Callum.

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Comments

Dianaknight about 4 hours ago

What a wonderful job you are doing for this special child! Overwhelming yet so promising. God bless you all!

Harbertsjulie408 about 2 hours ago

Thank you Lauren for the update on your sweet boy. We will continue to pray for him and you and Andy as well.

Musserkwta about 1 hour ago

Thank you for this update on Callum. We will continue to pray for your whole family and his medical team as you navigate this health journey together.