In mid September we will be traveling as a family from Hawai'i to Philadelphia to take Swara to the BPAN clinic that takes place at the Children's Hospital of Philadelphia (CHOP).

CHOP is a leader in rare disease care and research and we were THRILLED to learn they have a monthly BPAN clinic. Swara will be seen by CHOP's team of medical specialists and researchers who will review her history and make suggestions for care. We are truly looking forward to meeting specialists who regularly work with BPAN, we know we will learn so much and are grateful for the collaborative support they will provide our team in Hawai'i.