Support Registry Update

The Initital Consultation is Scheduled!

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In support of
Simon
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Simon’s Neuro Assessment Intake Consultation with a doctor is scheduled! Thank you to the initial handful of generous donors who contributed toward making this possible. We're eager to hear which intensive therapies he/she recommends to keep Simon intact as much as possible before hopefully receiving enzyme replacement therapy in the near future.Β 

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Comments

Becky Croke 3 months ago

Wonderful news!