Well, while half the world is on pause today due to the Microsoft crash... Paxton's cath is still on thanks to essential computers, nurses who can paper chart and just an all around push from our team to make this happen today.  We are so thankful. 

Today's cath will hopefully give us answers and a path forward.  Please pray for calm for Paxton's team and a successful cath with no complications.   

Yesterday, an emergent chest tube was placed as his work of breathing had increased to the point of needing it.  They drained ~650ml within 30 mins.  

We are still waiting to hear from guidance and opinions CHOP.  Due to everything being down I'm not sure if that will happen today or be nexr week.  

Please pray for Pax and say a little something for Camden. This has been very difficult for our family,  and Camden has been struggling a little mentally.  He sure loves his brother.  

We will all be together this weekend, even if it's not home.  🥰 

I'll update when I can.  Procedure has started. 

-Elise