Support Registry Update

Olivia Started Her New Medication

In support of
Olivia Fox
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Dear friends and family,

Olivia has officially begun her next phase of treatment.

After extensive evaluation and genetic testing at St. Jude, her medical team determined that a targeted therapy called Mirdametinib would be the most promising next step. This medication, a type of MEK inhibitor, was selected specifically because Olivia’s tumor has a genetic feature known as a BRAF fusion, which makes it more likely to respond to this type of treatment.

Unlike traditional chemotherapy, Mirdametinib is designed to precisely interrupt the abnormal cell signaling driving the tumor’s growth. Olivia started taking it this past Monday, and her doctors will be closely monitoring her through regular scans, labs, and follow-ups in the coming weeks.

There is hopeful news ahead: Olivia and her family are expecting to return home soon. However, they’ll be traveling back to St. Jude every 2-4 weeks for now, until there’s visible improvement in symptoms and evidence that the medicine is working. At that point, check-ups can be spaced out a bit more.

In the meantime, Olivia continues to show her bright spirit — especially when at the apartment, where she’s playing, growing again, and hitting new milestones. At the same time, she is experiencing more pain when lying flat, likely due to increased pressure from the tumor, and her care team is watching this closely.

Jason and Victoria remain hopeful and are asking for your continued prayers — specifically, that the medication will do exactly what it’s designed to do: stop the tumor from growing and begin to shrink it.

Your love, support, and encouragement continue to sustain them in this season.

“But I will restore you to health and heal your wounds,” declares the Lord.
Jeremiah 30:17

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Comments

Jeanj800

Keeping your whole family in our thoughts and prayers!! Asking God to allow this medicine to work and keep Olivia strong!💕
  • 7 months ago

Aunt Schaefer

God’s hand is at work! Olivia will be healed by our Great Physician, Our Heavenly Father!
  • 7 months ago

Vbracken60

Always in my prayers and heart.
  • 7 months ago

Kelly Diaz

Praying this medication works for this sweet little girl. Keeping you guys in prayer 🙏
  • 7 months ago

Angelabommarito

Jesus,
We lift up sweet Olivia to You. Let this medicine be powerful and precise - doing exactly what her little body needs. Wrap Victoria and Jason in Your peace tonight. Give them rest, strength & moments of joy even in the middle of this. Be near, Lord. We’re trusting You with every step. Amen.
  • 7 months ago