Update on Maintence drugs!

Hey there sweet friends and family!

Figured I haven’t made an update in a few months so I figured it was time for one! 

I’ve now been on Ibrance for two full cycles and starting the 3rd today.  I thought it was very manageable and for the most part it is- but I really hope to get these mouth sores under control.  They are very painful.  The first round I had such bad diarrhea and a huge mouth sore on my tongue that made it hard to eat - I ended up loosing 10lbs.  But my care team has me on Imodium (each day) and gave me the magic mouthwash to try.   They want to see if we can manage the side effects before lowering the dose.  The Imodium has helped the diarrhea so much! I get occasional episodes here and there but not like the first round.   The magic mouthwash just numbs my mouth temporarily but hope we can get the mouth sores to go away soon.  I’m open to suggestions! I rinse with baking soda and salt a few times a day.  Also, some days are just exhausting.  I’m able to make it through and some great days but there is some fatigue. Overall- that’s the worst of it. 

Now for some good news- my last round of blood work has great results!! My cancer DNA as well as my tumor markers have come down!!! Even my tumor markers are in ‘normal’ range! This medicine has some side effects- but it’s truly killing the cancer cells!! I’m anxious for my next scan to see where things are but this is good news! My overall bloodwork and iron is good as well.  My white count is low- but not so low to adjust the medication.  I am grateful to be on this medication as it has only been on the market about a year after clinical trials. 

I am scheduled to get my ovaries removed October 9th and will have some recovery time after that. More to come in what that looks like but I welcome prayers! 

More good news is I am the local speaker at this year’s Power of Pink lunch/ fundraiser for the Virginia Breast Cancer Foundation. I’ve also interviewed to sit on their board! Hoping my story can inspire someone to get genetically tested early and to help others going through it.  

I’m grateful to keep making memories and still here! I took an adult tap class over the summer which was a lot of fun and slowly dancing in City Modern Ensemble as understudying what I can.  Nick, Everett and I keep busy with trampoline parks, pool days, and putting together puzzles! 

Thank you for all your support and continued prayers.  If you could specifically pray for my mouth sores- I’d be grateful.  <3

Much love,
Megan and Everett