September 3, 2024
In support of
Mason Early Family
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Mason Early Family
Hello again! We continue to battle this infection, day by day. Mason continues to have a fever, although the Tylenol does appear to be helping for longer stretches of time. He is also battling some pain in his chest and abdomen. We just finished up with another chest X-ray to determine if there is an underlying reason for the pain or if there is anything else that can be done to help alleviate it and make him more comfortable.
The nausea that spiked during the first week of this infection seems to have gotten fully under control. Mason had zero appetite for the last week, which led to him getting hooked up to round the clock nutrition to maintain his weight as much as we can. The appetite seems to be coming back, slowly, and we are hoping to move off the IV nutrition soon. (Mason was able to eat a late night snack last night, breakfast this morning and polished off an 11 ounce steak this afternoon. After not having eaten for the last five days, this is a HUGE deal!)
The plan for treatment as of today is to continue on the course of antibiotics that he has been on for an additional 14 days, while we wait for his body to fully respond. Unfortunately, that means that we will not be released to go home this week, which was the original goal. Mason's blood counts are starting to show signs of recovery, which will hopefully help to fight off this infection even faster.
We are waiting to hear what this might mean for the bone marrow transplant schedule, which will need to be pushed back to accommodate this extra recovery time (we hope- it would be really hard to move directly from this hospital to the next for transplant).
Our focus for the next few days will be to start getting Mason out of bed more frequently, to rebuild his endurance and strength with physical therapy, and possibly to dive back into some school work, if he feels up to it. We also hope to move off the IV nutrition and get back to eating regular meals.
Smilegrams would be much appreciated as Mason's stay here was just extended by an additional 10 days (at least). He is really looking forward to a break at home, seeing his brand new bedroom and getting it all set up for when he finally gets to go home following the transplant.
Thank you for your continued support and encouragement!
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Bla12